Can you help us improve the quality of services for congenital heart disease? Find out more about this study here and join the private Facebook discussion group.

News & Events :       view all news & events

21 Dec 2020

21/12/20  Impact of COVID-19 on patients with congenital heart disease

A summary of international papers researching the impact of COVID-19 on patients with congenital heart disease. Download here. If your child is unfortunate enough to text positive for COVID-19 please inform their cardiac team so their data can be added to the UK study.  

18/11/20  Webinars for parents of children with heart conditions

Supporting your child coming into hospital. 23rd November 2020, 11am. Managing impact of a having a child with a heart condition, for parents. 30th November 2020, 1pm. Supporting siblings of a child with a heart condition. 7th December 2020, 11am

12/11/20  Updated information from BCCA and RCPCH in light of new lockdown.

The BCCA (British Congenital Cardiac Association) have updated their guidance for patients, parents, charities and support groups in light of the national lockdown for England. They can be read here. This advice is that those in the clinically extremely vulnerable group no longer need to follow previous shielding advice. Guidance advises attending school and returning […]

Our Twitterings :       follow us

Contact :

Children’s Heart Federation:
Suite 12
The Centre,
Lakes Industrial Park

Freephone Infoline :
0300 561 0065
Please leave a message and we will return your call.

Office Tel :
0300 561 0065