Welcome!
News & Events : view all news & events
27/05/20 Back to school or not?
Returning to school – we have managed to obtain some guidance on this from the BCCA. (British Congenital Cardiac Association). Children and young people who are considered extremely clinically vulnerable and shielding should continue to shield and should not be expected to attend. Clinically vulnerable (but not clinically extremely vulnerable) people are those considered to […]
23/04/20 What are your views on using patients’ health data to try to improve services?
The Children’s Heart Federation is involved in a new research project called CHAMPION to try to improve how the quality of services for congenital heart disease (CHD) is measured and reported in England. Many research projects collect new data and, as part of that, patients are explicitly asked to consent to that new data being […]
21/04/20 Henley’s story
Told by his mother, Danielle I had a scan when I was 21 weeks pregnant, my baby was diagnosed with hypoplastic left heart syndrome (HLHS). Henley was born in 2013 and after he was examined by the cardiologist, the diagnosis was changed to HLHS with complete unbalanced AVSD and vessel variation. Henley has had three […]
