Can you help us improve the quality of services for congenital heart disease? Find out more about this study here and join the private Facebook discussion group.

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18/11/20  Webinars for parents of children with heart conditions

Supporting your child coming into hospital. 23rd November 2020, 11am. Managing impact of a having a child with a heart condition, for parents. 30th November 2020, 1pm. Supporting siblings of a child with a heart condition. 7th December 2020, 11am

12/11/20  Updated information from BCCA and RCPCH in light of new lockdown.

The BCCA (British Congenital Cardiac Association) have updated their guidance for patients, parents, charities and support groups in light of the national lockdown for England. They can be read here. This advice is that those in the clinically extremely vulnerable group no longer need to follow previous shielding advice. Guidance advises attending school and returning […]

02/09/20  British Congenital Cardiac Association – update on returning to work and education

The BCCA has provided an update on returning to education for children with heart conditions. It can be read here. Helpful links: RCPCH talking to families British Heart Foundation children returning to school RCPCH shielding and education  

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Contact :

Children’s Heart Federation:
Suite 12
The Centre,
Lakes Industrial Park

Freephone Infoline :
0300 561 0065
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Office Tel :
0300 561 0065