This page feeds the latest news from all parts of our website.

Feb 20th 2020 - A new book about heart conditions for Key Stage 2 children

After the success and popularity of the book for small children Rosie goes red, Violet goes blue CHF is planning a new book aimed at slightly older children. This book will feature two brothers, one with a serious heart condition and one without. The book will go through their day highlighting the differences and similarities between […]

Feb 18th 2020 - Short film about surgical scarring

Well done to Paul Mulgrew who has CHD. He has produced this short thought provoking film that deals with cardiac surgical scarring. View this post on Instagram A post shared by RAINDANCE (@raindancefilmfestival) on Feb 17, 2020 at 10:14am PST

Feb 12nd 2020 - Student documentary about children’s heart conditions

Help raise awareness of heart conditions and encourage others to do the same, particularly during heart month. Ellie has asked us to share this message: “I’m a university student and I’m making a documentary about congenital heart disease for my final project. I’m looking to speak to a family whose child had open heart surgery […]

Feb 05th 2020 - Public Health England – request for feedback from public

Public Health England are interested in getting feedback from members of the public who are interested in screening or have used the National Screening Committee website. Your feedback will help PHE to make improvements to the website to ensure that it is useful and accessible to those involved in understanding and commenting on screening policies. […]

Feb 04th 2020 - Ellie Dixon and Nick Hall

Nick Hall and Ellie Dixon are cycling from John O’Groats to Land’s End to raise funds for the Children’s Heart Federation (CHF) in memory of their baby daughter Harper who was born with Tetralogy of Fallots but sadly died on 4th July 2019, just a few weeks old.  Fundraising stars Nick Hall and Ellie Dixon plan to cycle the 874 miles from John O’Groats […]

Jan 30th 2020 - Global, regional, and national burden of congenital heart disease, 1990–2017

An interesting article in The Lancet contains the good news that globally from 1990 to 2017 there has been an increase in survival rate of over 30% of infants born with CHD. The full article can be read here.   SDI = Social demographic indicator Global, regional, and national burden of congenital heart disease, 1990–2017: […]

Oct 28th 2019 - New Ofsted guidance on medical conditions in school

CHF is pleased to announce that new Ofsted guidance now includes as part of its safeguarding assessment a check on the schools’ support for children with medical conditions. As members of the Health Conditions in Schools Alliance CHF has campaigned alongside other charities to get children with health conditions the support they need at school […]

Oct 09th 2019 - Meeting of Health Conditions in School Alliance

Today CHF will be attending a meeting of the Health Conditions in School Alliance. CHF together with other charities and organisations that are concerned with the welfare of children with health conditions has been working to ensure that schools have a Medical Conditions Policy, that it is available on the school’s website and for OFSTED […]

Sep 25th 2019 - Have you told your child’s heart story?

Is your child’s story on the CHF website? Occasionally we receive a request to use these stories from people conducting research of benefit to children with heart conditions. Please let us know by emailing if you do not wish for your child’s story to be used for research projects. We would not be passing […]

Sep 03rd 2019 - Need for families to talk about organ donation as 2,500 potential transplants missed last year – press release from NHS blood & transplant

NHS Blood and Transplant is urging people to talk to their families during Organ Donation Week (September 2 to 8) as figures show around 2,500 organs, each representing an opportunity for transplant, were missed in the last year because families said no to donating their relative’s organs. Despite record levels of organ donation, family refusals […]

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