The Children’s Heart Federation is a parent-led charity working with partner groups to make life better for children and young people, with acquired or congenital heart disease, in Great Britain and Northern Ireland.

News & Events :       view all news & events

19 Nov 2018

19/11/18  Global Atrial Fibrillation Aware Week

Atrial Fibrillation (AF) is the most common arrhythmia (heart rhythm disorder). Over 1.5 million people have been diagnosed with AF in the UK alone. This Global AF Aware Week 19 – 25 November, find out more about AF and its detection and management. Further information: http://www.heartrhythmalliance.org/afa/uk/af-aware-week

16 Nov 2018

25/10/18  Children’s Heart Study summer newsletter

Download the project newsletter here. Over 5000 paediatric cardiac surgery procedures are performed in the UK each year and early survival has improved to over 98% however there is concern that parents are not adequately informed about possible outcomes. This research project being carried out at Great Ormond Street Hospital with input from CHF, looks […]

25 Oct 2018

22/10/18  Fathers’ experiences of having a child with a congenital heart defect

A new research study aims to capture fathers’ experiences when their child is born with a congenital heart defect (CHD). Are you a father with a child diagnosed with CHD? You are invited to participate in this study. The research study will focus on the fathering role and the interaction between fathers and healthcare professionals […]

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Contact :

Children’s Heart Federation:
Suite 12
The Centre,
Lakes Industrial Park

Freephone Infoline :
0300 561 0065
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Office Tel :
0300 561 0065