The Children’s Heart Federation is dedicated to helping children with congenital or acquired heart disease and their families in Great Britain and Northern Ireland.
We are a parent-led charity consisting of more than twenty organisations, many of which are registered charities whose main aim is the support of families of children with heart conditions.
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Are you a medical professional with patients presenting with cardiomyopathy? Please know that CHF member group Cardiomyopathy UK has a support network of affected volunteers who are willing to speak with newly diagnosed patients via the phone or email. Further information: http://www.cardiomyopathy.org/medical-professionals/mp
The Annual Meeting of the British Congenital Cardiac Association (BCCA) will take place on: 23 – 24 Nov 2016 at the East Midlands Conference Centre, Nottingham. Sessions will include: Ethical dilemmas in congenital heart disease (CHD) from fetus to adult; Advances in imaging; Preventing sudden death in the young. Further information: http://www.bcca2016.co.uk/
Hearing that your child may require a pacemaker may be an understandably challenging moment. And clear impartial information is vital for you all as a family. Please know that CHF has a free and downloadable factsheet on pacemakers. Information that you can share and return to. Further information: http://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/if-your-child-needs-a-pacemaker/
Children’s Heart Federation:
Whitechapel Technology Centre
75 Whitechapel Road
Freephone Infoline :
0808 808 5000
(9.30am – 4.30pm Mon to Fri)
Office Tel :
020 7422 0630 (9am-5pm Mon to Fri)