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The Children’s Heart Federation is a parent-led charity working with partner groups to make life better for children and young people, with acquired or congenital heart disease, in Great Britain and Northern Ireland.


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23 Mar 2018

22/03/18  Cardiomyopathy and genetics

Did you know that cardiomyopathy is often genetic and has symptoms such as tiredness, breathlessness and palpitations? Find out more about what symptoms to look out for in your heart child. CHF partner group Cardiomyopathy UK’s video about cardiomyopathy provides further insights. More information: http://www.cardiomyopathy.org/cardiomyopathy-information/an-introduction-to-cardiomyopathy-video

21 Mar 2018

21/03/18  World Downs Syndrome Day 2018 goes viral

World Downs Syndrome Day 2018’s awareness message is going viral through five year old Chloe’s totally engaging video invitation to wear odd socks on 21 March, World Downs Syndrome Day.  The video posted by her mum has been viewed by over 21 million. http://bit.ly/2FSpix2 And Chloe’s collegial invitation to celebrate difference is at the heart of […]

21 Mar 2018

19/03/18  PHE screening standards revision

Following consultation, Public Health England (PHE) have updated their screening standards for Down’s, Edwards’ and Patau’s syndrome.  The revised standards have an implementation date of 01 April 2018. All pregnant women in England are offered a screening test for Down’s syndrome, Edwards’ syndrome and Patau’s syndrome between 10 and 14 weeks of pregnancy. This is […]

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Contact :

Children’s Heart Federation:
Cullen Mill
Braintree Road
Essex CM8 2DD

Freephone Infoline :
0808 808 5000
Please leave a message and we will return your call.

Office Tel :
0300 561 0065