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The Children’s Heart Federation is a parent-led charity working with partner groups to make life better for children and young people, with acquired or congenital heart disease, in Great Britain and Northern Ireland.


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News & Events :       view all news & events

18 May 2018

14/05/18  Write to your MP about safety in school settings for children with a medical health condition

CHF and the Health Conditions in Schools Alliance is campaigning for safety for all children with a medical health condition in a school setting. We want you to write to your MP about this. Download a template letter here. After it came to light that children with health conditions were not getting the care they […]

11 May 2018

26/04/18  Write to your MP about pulse oximetry testing

CHF has been campaigning for the introduction of Pulse Oximetry screening for all newborn babies in the UK since 2015. The test – measuring the oxygen levels in the blood – is proven to be effective  in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its inclusion in the […]

26 Apr 2018

23/04/18  Experience of Care Week 2018

Experienced excellent care at your heart child’s hospital appointments? Why not share your feedback on great care or suggest what could have worked better? Experience of Care Week takes place on 23 – 27 April and addresses what is happening across health and social care to improve experiences of care for patients, carers and staff. […]

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Contact :

Children’s Heart Federation:
Suite 12
The Centre,
Lakes Industrial Park

Freephone Infoline :
0300 561 0065
Please leave a message and we will return your call.

Office Tel :
0300 561 0065