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The Children’s Heart Federation is a parent-led charity working with partner groups to make life better for children and young people, with acquired or congenital heart disease, in Great Britain and Northern Ireland.


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20 Jul 2018

16/07/18  Fact sheet on Attendance

Children with medical conditions should not be penalised if they are unable to come to school because of their medical condition. If you are facing problems, this fact sheet explains: what support is in place and what your rights are. Further information: https://bit.ly/2zJCnqw

13 Jul 2018

13/07/18  Kawasaki Disease: The most common acquired heart disease in infants and toddlers

Researchers from the UK and Germany have published a study addressing Kawasaki Disease (KD). KD is the most common acquired heart disease that mostly affects infants and toddlers. ‘Delayed diagnosis and treatment results in coronary artery aneurysms in up to 25% of all affected individuals.’ Link to study: https://bit.ly/2LdVHka Further information from CHF’s Kawasaki Disease […]

13 Jul 2018

09/07/18  Organ donation & transplantation

NHS Blood and Transplant’s Organ Donation and Transplantation Activity Report for 2017/2018 includes the following key figures: The consent rate for deceased donation has reached a record high, with 65.5% of families agreeing to support the donation of a relative’s organs. The number of deceased donors reached a record high of 1574 an 11% increase […]

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Contact :

Children’s Heart Federation:
Suite 12
The Centre,
Lakes Industrial Park

Freephone Infoline :
0300 561 0065
Please leave a message and we will return your call.

Office Tel :
0300 561 0065