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The Children’s Heart Federation is a parent-led charity working with partner groups to make life better for children and young people, with acquired or congenital heart disease, in Great Britain and Northern Ireland.


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21 Jul 2017

18/07/17  CHD Information Service via Factsheets

Did you know the Children’s Heart Federation (CHF) offers an information service including factsheet sets about heart conditions and caring for heart children that are free to download and share? Further information: http://www.chfed.org.uk/how-we-help/information-service/

21 Jul 2017

18/07/17  CHD & Neurodevelopmental Outcomes

  Research cited in ‘The Journal of Pediatrics’ addresses ‘Neurodevelopmental Outcome in Children after Fetal Cardiac Intervention for Aortic Stenosis with Evolving Hypoplastic Left Heart Syndrome.’ Further information: http://www.sciencedirect.com/science/article/pii/S0022347617301440   CHF’s Factsheet on Aortic Stenosis. Further information: http://www.chfed.org.uk/how-we-help/information-service/heart-conditions/aortic-stenosis/   CHF’s Factsheet on Hypoplastic Left Heart Syndrome. Further information: http://www.chfed.org.uk/how-we-help/information-service/heart-conditions/hypoplastic-left-heart-syndrome-hlhs/

18/07/17  Response from CHF to the proposals from NHS England to implement the standards for congenital heart disease (CHD) services for children and adults in England

1. The capacity in which we are responding  CHF is a national CHD patient/parent led organisation that represents patients with all forms of CHD and their carers. We have taken account of the views expressed by both our partner organisations and by individual parents and carers. 2. Our response to NHS England’s proposal that in […]

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Contact :

Children’s Heart Federation:
Cullen Mill
Braintree Road
Essex CM8 2DD

Freephone Infoline :
0808 808 5000
Please leave a message and we will return your call.

Office Tel :
0300 561 0065