The Children’s Heart Federation is dedicated to helping children with congenital or acquired heart disease and their families in Great Britain and Northern Ireland.
We are a parent-led charity consisting of more than twenty organisations, many of which are registered charities whose main aim is the support of families of children with heart conditions.
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What is the purpose of the study? This study (which is called CONNECT) will look at people’s experiences and views of being invited to consent for their children to take part in medical research studies (also known as trials) when these are conducted in different situations. The two situations we want to compare are: a) [...]
Embargoed until: Monday 13th May 2013 PARENTS URGED TO ‘THINK HEART’ TO SAVE THEIR BABY’S LIFE DURING CHILDREN’S HEART WEEK During Children’s Heart Week (13th- 19th May), parents are being urged to check for warning signs of heart problems experienced by their children and follow life-saving guidance issued by the UK’s leading children’s heart [...]
n.b the image on the bottom right is Alex Smith not Anne Keatley Clarke.
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Children’s Heart Federation:
2-4 Great Eastern Street
Freephone Infoline :
0808 808 5000
(9.30am – 4.30pm Mon to Fri)
Office Tel :
020 7422 0630 (9am-5pm Mon to Fri)