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The Children’s Heart Federation is a parent-led charity working with partner groups to make life better for children and young people, with acquired or congenital heart disease, in Great Britain and Northern Ireland.


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13 Jul 2018

13/07/18  Kawasaki Disease: The most common acquired heart disease in infants and toddlers

Researchers from the UK and Germany have published a study addressing Kawasaki Disease (KD). KD is the most common acquired heart disease that mostly affects infants and toddlers. ‘Delayed diagnosis and treatment results in coronary artery aneurysms in up to 25% of all affected individuals.’ Link to study: https://bit.ly/2LdVHka Further information from CHF’s Kawasaki Disease […]

13 Jul 2018

09/07/18  Organ donation & transplantation

NHS Blood and Transplant’s Organ Donation and Transplantation Activity Report for 2017/2018 includes the following key figures: The consent rate for deceased donation has reached a record high, with 65.5% of families agreeing to support the donation of a relative’s organs. The number of deceased donors reached a record high of 1574 an 11% increase […]

06 Jul 2018

06/07/18  Young adults with congenital heart disease and driving

Did you know that you must tell the Driver and Vehicle Licensing Agency (DVLA) if you have congenital heart disease and have symptoms that affect safe driving? Further information: https://www.gov.uk/congenital-heart-disease-and-driving

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Contact :

Children’s Heart Federation:
Suite 12
The Centre,
Lakes Industrial Park

Freephone Infoline :
0300 561 0065
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Office Tel :
0300 561 0065