The Children’s Heart Federation is dedicated to helping children with congenital or acquired heart disease and their families in Great Britain and Northern Ireland.
We are a parent-led charity consisting of more than twenty organisations, many of which are registered charities whose main aim is the support of families of children with heart conditions.
News & Events : view all news & events
The newborn pulse oximetry screening pilot has begun The aims of the pilot are to: • understand the impact of implementing newborn pulse oximetry screening on NHS services • find out if it is feasible to roll out pulse oximetry nationally as an addition to the existing newborn and infant physical examination tests within 72 […]
Since issuing a call for evidence last summer, a substantial number of families have contacted the Review and have helped to build up a detailed picture of experiences of the Children’s Cardiac Service at Bristol Children’s Hospital. In addition, evidence from the Trust and other organisations has enabled inquiry into the issues raised. The Review […]
17/08/15 Response from CHF on the proposal for establishing a PREMS survey for Congenital Heart Disease
Children’s Heart Federation supports the development of PREMs (Patient Reported Experience Measures) and calls also for the development of PROMs (Patient Reported Outcome Measures) because we believe that together they form a useful tool for patients to provide direct feedback on their care to help drive improvement in services. We feel both are needed because […]
Children’s Heart Federation:
Whitechapel Technology Centre
75 Whitechapel Road
Freephone Infoline :
0808 808 5000
(9.30am – 4.30pm Mon to Fri)
Office Tel :
020 7422 0630 (9am-5pm Mon to Fri)