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The Children’s Heart Federation is a parent-led charity working with partner groups to make life better for children and young people, with acquired or congenital heart disease, in Great Britain and Northern Ireland.


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11 Aug 2017

07/08/17  Young cardiomyopathy information and support

Are you a young person diagnosed with cardiomyopathy? CHF partner group Cardiomyopathy UK has services for children, young people and younger-adults (CYP&YA). These include peer support volunteers and the CYP&YA Panel. Further information: http://www.cardiomyopathy.org/young-people/children-young-people-and-young-adults

04 Aug 2017

31/07/17  How a Molly’s dolly can help

CHF have found that parents and carers often find it an understandable challenge to explain a forthcoming congenital heart disease (CHD) surgery to their heart children. CHF’s Molly’s dollies can help to bring a visual and tangible link to this conversation. Molly’s dollies are a rag doll that can be personalised for each child’s unique […]

28 Jul 2017

24/07/17  CHF’s signposts and CHD answers

Whether you have questions about: transition information; education, health and care needs (EHC) assessments; disability discrimination; or home to school transport; you can find answers to these from CHF’s information service as well as our signposts page to organisations including IPSEA, Independent Parental Special Education Advice. Further information CHF’s signpost page: http://www.chfed.org.uk/how-we-help/other-organisations/ Further information IPSEA: https://www.ipsea.org.uk/

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Contact :

Children’s Heart Federation:
Cullen Mill
Braintree Road
Essex CM8 2DD

Freephone Infoline :
0808 808 5000
Please leave a message and we will return your call.

Office Tel :
0300 561 0065