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The Children’s Heart Federation is a parent-led charity working with partner groups to make life better for children and young people, with acquired or congenital heart disease, in Great Britain and Northern Ireland.


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21 Mar 2017

22/03/17  NHS to notify heart surgery patients of small risk of infection caused by heater cooler units 

The NHS yesterday (Tuesday 21st March) took the precautionary step of writing to patients who have had certain types of open heart surgery to inform them that they may have a  low risk of having contracted an infection caused by Mycobacterium chimaera (M. chimaera). Over the next two weeks, letters are being sent to patients in England, Scotland, Northern Ireland and Wales who have […]

21 Mar 2017

20/03/17  An opportunity for young people with CHD to be heard

The NHS would like to hear from young people with congenital heart disease with their opinions about the planned changes to CHD services nationwide. Find out more and complete the survey here. NHS survey for young people with CHD

13 Mar 2017

13/03/17  New study in the USA explores the benefits of pre-op 3D printed hearts

“This study is incredibly important because it will finally quantify what we know from first-hand experience: 3D-printed patient-specific models improve surgery, improve outcomes and result in lower treatment costs,” said Dr Yoav Dori, Peadiatric Cardiologist, Children’s Hospital of Philadelphia. “If we can empirically demonstrate this, it will be a game-changer for treating not only children […]

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Contact :

Children’s Heart Federation:
Unit 3.37
Whitechapel Technology Centre
75 Whitechapel Road
E1 1DU

Freephone Infoline :
0808 808 5000
(9.30am – 4.30pm Mon to Fri)

Office Tel :
020 7422 0630 (9am-5pm Mon to Fri)