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The Children’s Heart Federation is dedicated to helping children with congenital or acquired heart disease and their families in Great Britain and Northern Ireland.

We are a parent-led charity consisting of more than twenty organisations, many of which are registered charities whose main aim is the support of families of children with heart conditions.


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News & Events :       view all news & events

24 Sept 2015

24/09/15  Pulse Oximetry Pilot: Phase Two

The second phase of the pulse oximetry pilot commenced on 1st July 2015 with all pilot trusts aligning to the Newborn Pulse Oximetry Screening Pathway and Group B trusts that had not yet previously performed pulse oximetry commencing pulse oximetry screening. The Children’s Heart Federation has heard that the second phase of the pilot is […]

26 Aug 2015

26/08/15  Pulse oximetry pilot under way

The newborn pulse oximetry screening pilot has begun The aims of the pilot are to: • understand the impact of implementing newborn pulse oximetry screening on NHS services • find out if it is feasible to roll out pulse oximetry nationally as an addition to the existing newborn and infant physical examination tests within 72 […]

19 Aug 2015

19/08/15  Update on Bristol Review

Since issuing a call for evidence last summer, a substantial number of families have contacted the Review and have helped to build up a detailed picture of experiences of the Children’s Cardiac Service at Bristol Children’s Hospital.  In addition, evidence from the Trust and other organisations has enabled inquiry into the issues raised. The Review […]

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Contact :

Children’s Heart Federation:
Unit 3.37
Whitechapel Technology Centre
75 Whitechapel Road
E1 1DU

Freephone Infoline :
0808 808 5000
(9.30am – 4.30pm Mon to Fri)

Office Tel :
020 7422 0630 (9am-5pm Mon to Fri)