News

This page feeds the latest news from all parts of our website.
04 Dec 2016

01/12/16 - Transition support for young people with congenital heart disease (CHD)

Are you a young person who will soon transition to receiving support from an adult multidisciplinary team with congenital heart disease (CHD) specialism? Please share with CHF about what has worked well for you and what you would like to see improved — literally. Your here & now reality, experience & views of CHD are […]

30 Nov 2016

30/11/16 - CHF’s new fathers’ points of view request on CHD & family support

An international research study noted in the Karolinska Institutet has focused on new fathers’ concerns including: money upbringing the health of their child. CHF would like to hear from our new fathers on their views too. Please share your experiences via info@chfed.org.uk or via our Facebook page. We’d like to start a conversation on this […]

29 Nov 2016

24/11/16 - Congenital Heart Disease (CHD) & Disability Living Allowance (DLA) meeting at Parliament on 29 November 2016

Tuesday 29 November 2016 will bring together national children’s heart and adult congenital heart charities to a meeting in Parliament to obtain MPs’ support in getting children’s heart disease recognised in the Disability Living Allowance Assessor Pack. We need your help to get as many MPs to attend the meeting as possible. The event will […]

23 Nov 2016

21/11/16 - CHF’s Christmas Lights Challenge & CHD Awareness 2016

CHF launch our Christmas Lights Challenge! How long will it take our heart children and families to unravel the Christmas lights this year? CHF’s Molly’s dollies took a record 5 minutes!  And they’ve taken this photo to prove it! Share your record time too and why not donate your minutes in pounds to CHF’s JustGiving […]

20 Nov 2016

14/11/16 - CHD & DLA Awareness Event at Parliament on 29 November 2016

On Tuesday 29 November 2016 national children’s heart and adult congenital heart charities are holding a meeting in Parliament to obtain MPs’ support in getting children’s heart disease recognised in the Disability Living Allowance Assessor pack. We need your help to get as many MPs to attend the meeting as possible which will be hosted by: […]

13 Nov 2016

07/11/16 - Parents’ views on developing an app to manage children’s pain

CHF would greatly value CHF parents’ views following a request from a research team who are addressing a project to develop the content and functionality of an app to inform, engage and support parents in managing their child’s pain whilst in hospital. We are circulating a survey at the moment to ask parents what they […]

06 Nov 2016

31/10/16 - Cardiac conditions in the young

Are you a young person who has recently been diagnosed with a heart condition? CHF member group Cardiac Risk in the Young (CRY) has written an e-booklet called: Cardiac Conditions in the Young: From ARVC to WPW This downloadable booklet provides a clear explanation on medical terms and is specifically written for a newly diagnosed […]

30 Oct 2016

24/10/16 - Communicating about cardiomyopathy

Are you a medical professional with patients presenting with cardiomyopathy? Please know that CHF member group Cardiomyopathy UK has a support network of affected volunteers who are willing to speak with newly diagnosed patients via the phone or email. Further information: http://www.cardiomyopathy.org/medical-professionals/mp

23 Oct 2016

17/10/16 - British Congenital Cardiac Association (BCCA) AGM 2016

The Annual Meeting of the British Congenital Cardiac Association (BCCA) will take place on: 23 – 24 Nov 2016 at the East Midlands Conference Centre, Nottingham. Sessions will include: Ethical dilemmas in congenital heart disease (CHD) from fetus to adult; Advances in imaging; Preventing sudden death in the young. Further information: http://www.bcca2016.co.uk/

16 Oct 2016

10/10/16 - Congenital heart disease and pacemakers

Hearing that your child may require a pacemaker may be an understandably challenging moment.  And clear impartial information is vital for you all as a family. Please know that CHF has a free and downloadable factsheet on pacemakers. Information that you can share and return to. Further information: http://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/if-your-child-needs-a-pacemaker/

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