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26 Sep 2016

26/09/16 - Communicating about cardiomyopathy

Every question you may have about cardiomyopathy is really important to us. Please know CHF member group Cardiomyopathy UK has cardiomyopathy support nurses available to answer your questions and concerns. You are welcome to contact the cardiomyopathy nurses on-line or via phone and email. Communication is key and whether you or a loved one have […]

26 Sep 2016

24/09/16 - A week to remember

CHF member group Cardiac Risk in the Young (CRY)’s Raising Awareness Week 2016 takes place: 19 – 27  November 2016 CRY’s core aim is to reduce the incidence of young sudden cardiac death through: raising awareness supporting the bereaved providing expert cardiac pathology screening for young people to identify cardiac conditions research to inform policy & […]

23 Sep 2016

23/09/16 - High 5 for CHF’s Fiver Friday!

CHF’s Molly’s dollies are using their highlighters on every number 5 they come across today to invite us all to send CHF a fiver on Fiver Friday! And every five pounds will make a fantastic difference to brightening up a heart child’s congenital heart journey and help fund more Molly’s dollies for more CHF children […]

23 Sep 2016

19/09/16 - CHD sports inspiration Alfie Hewett

CHF send many congratulations to Alfie Hewett — 100% inspiring wheelchair tennis player born with congenital heart disease. Alfie’s Tetralogy of Fallot has provided no limits to Alfie’s  representing Great Britain at the 2016 Rio Paralympics and for winning silver medals in both the singles and doubles! A true CHF Champion twice over! Further information: […]

19 Sep 2016

09/09/16 - Health conditions in schools

Does your child’s school require guidance and support in looking after children with health conditions? The Children’s Heart Federation (CHF) is part of the Health Conditions in Schools Alliance.   This is a group of over 30 organisations working collaboratively to ensure children with health conditions receive the care that they require in schools. The alliance […]

09 Sep 2016

05/09/16 - Organ Donation Week 2016

Donor – Recipient! CHF’s Molly’s dollies dedicate this Organ Donation Week 2016 to the most profound of connections – the gift of life given by organ donation. Further information: NHS Blood & Transplant Organ Donation & Transplantation Activity Report 2015/16   NHS History of organ donation interactive timeline:

05 Sep 2016

01/09/16 - Extending the conversation on organ donation

CHF’s Molly’s dollies are dedicating these September days to extending the conversation on organ donation. And focusing on the most special Present: Organ Donation and the gift of Life. Further information:    

31 Aug 2016

30/08/16 - Survey on paediatric prescribing

Are you a health professional involved in paediatric prescribing? Would you like to participate in a Paediatric Prescribing Support Tools User Survey? The Royal College of Paediatrics & Child Health (RCPCH) is using this survey as a part of a wider research project, run by RCPCH, with the goal of identifying gaps and potential for further […]

29 Aug 2016

22/08/16 - Signs & support for cardiomyopathy

Identifying the signs! CHF member group ‘Cardiomyopathy UK’ has produced a video to help nurses and doctors recognise the key symptoms of cardiomyopathy. Please view the video via the link below: A further video identifying ways to support patients with cardiomyopathy can be accessed via the link below: Please contact CHF via […]

22 Aug 2016

15/08/16 - Respite & support for families with congenital heart disease (CHD) or feeding issues

Would you like to have time for a little bit of ‘we’ time – just you and your loved ones? CHF member group Lagan’s Foundation offers home respite and support services to families of young children with heart defects or feeding issues  at home or in hospital. You’re welcome to express an interest and receive […]

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