News

This page feeds the latest news from all parts of our website.
22 Sep 2017

18/09/17 - Awareness of congenital heart disease (CHD): a collaborative effort

The Children’s Heart Federation (CHF) is working with partner groups to ensure that awareness of congenital heart disease (CHD) and it’s diagnosis and support is extended as widely as possible. Find out more about our collaborative aims and work. Further information: http://www.chfed.org.uk/about-us/member-groups/

15 Sep 2017

11/09/17 - Caring for heart children: A practical handbook

CHF partner group Heartline Families is offering associate members a practical handbook for parents and carers of children diagnosed with a heart condition.  Already in it’s 5th edition, chapters within the book address all key areas of supporting a heart child and their siblings including diagnosis; schooling; holidays; genetic counselling and many other subjects as […]

Aug 31st 2017 - Fundraising star – Mandy Harbin

Thank you to fundraising star Mandy Harbin who has helped CHF by fund raising in memory of her daughter who had a heart condition.

31 Aug 2017

29/08/17 - Sharing the congenital heart disease (CHD) story

Find out more about the Children’s Heart Federation’s (CHF’s) personal stories of congenital heart disease (CHD). These are the inspiring stories of our heart children and families that motivate CHF constantly. Help us grow the CHD awareness story and extend information and support to all heart children and families. Further information: http://www.chfed.org.uk/category/your-stories/

25 Aug 2017

21/08/17 - Cardiac risk in the young Surgery Supporters Club

CHF partner group Cardiac Risk in the Young (CRY) has just launched the CRY Surgery Supporters Club for young people who have had, or are about to confront, potentially lifesaving surgery of implantation of a defibrillator, pacemaker, or ablation and want to talk to others who have been through a similar experience. Find out more […]

11 Aug 2017

07/08/17 - Young cardiomyopathy information and support

Are you a young person diagnosed with cardiomyopathy? CHF partner group Cardiomyopathy UK has services for children, young people and younger-adults (CYP&YA). These include peer support volunteers and the CYP&YA Panel. Further information: http://www.cardiomyopathy.org/young-people/children-young-people-and-young-adults

04 Aug 2017

31/07/17 - How a Molly’s dolly can help

CHF have found that parents and carers often find it an understandable challenge to explain a forthcoming congenital heart disease (CHD) surgery to their heart children. CHF’s Molly’s dollies can help to bring a visual and tangible link to this conversation. Molly’s dollies are a rag doll that can be personalised for each child’s unique […]

28 Jul 2017

24/07/17 - CHF’s signposts and CHD answers

Whether you have questions about: transition information; education, health and care needs (EHC) assessments; disability discrimination; or home to school transport; you can find answers to these from CHF’s information service as well as our signposts page to organisations including IPSEA, Independent Parental Special Education Advice. Further information CHF’s signpost page: http://www.chfed.org.uk/how-we-help/other-organisations/ Further information IPSEA: https://www.ipsea.org.uk/

21 Jul 2017

18/07/17 - CHD Information Service via Factsheets

Did you know the Children’s Heart Federation (CHF) offers an information service including factsheet sets about heart conditions and caring for heart children that are free to download and share? Further information: http://www.chfed.org.uk/how-we-help/information-service/

21 Jul 2017

18/07/17 - CHD & Neurodevelopmental Outcomes

  Research cited in ‘The Journal of Pediatrics’ addresses ‘Neurodevelopmental Outcome in Children after Fetal Cardiac Intervention for Aortic Stenosis with Evolving Hypoplastic Left Heart Syndrome.’ Further information: http://www.sciencedirect.com/science/article/pii/S0022347617301440   CHF’s Factsheet on Aortic Stenosis. Further information: http://www.chfed.org.uk/how-we-help/information-service/heart-conditions/aortic-stenosis/   CHF’s Factsheet on Hypoplastic Left Heart Syndrome. Further information: http://www.chfed.org.uk/how-we-help/information-service/heart-conditions/hypoplastic-left-heart-syndrome-hlhs/

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