News

This page feeds the latest news from all parts of our website.
22 Jun 2018

18/06/18 - Help develop the NICE guideline on atrial fibrillation

The National Institute for Health and Care Excellence (NICE) are inviting lay members to join their atrial fibrillation guideline committee. This is an 18 month commitment and will ensure your views of atrial fibrillation are fully taken on board through experiences gained either as a patient or as an advocate for a loved one diagnosed […]

15 Jun 2018

11/06/18 - Your story.  Your voice.

CHF has received a media request for health stories ahead of the 70th anniversary of the National Health Service. This project aims to capture people’s memories of the NHS via a voicemail platform with a selection of audio recordings being published with permission via print and online. You’re invited to call up and record experiences […]

08 Jun 2018

04/06/18 - Recipes to help children with congenital heart disease (CHD)

CHF are sharing recipes from a cookbook especially created for children with congenital heart disease. The recipe book For babies who need to get the most out of every mouthful is available as a free download for parents here If you’d like a hard copy in A5 format, you’re welcome to purchase online  here or by calling 023 8120 8881. Packs […]

01 Jun 2018

31/05/18 - Help with travel costs to hospital

Are you aware that you could receive help with the cost of travel to hospital if you have a low income? The NHS Low Income Scheme could help with the cost of travelling to receive NHS treatment. Further information: https://www.nhsbsa.nhs.uk/nhs-low-income-scheme

Apr 26th 2018 - 11th May Write to your MP about pulse oximetry testing

CHF has been campaigning for the introduction of Pulse Oximetry screening for all newborn babies in the UK since 2015. The test – measuring the oxygen levels in the blood – is proven to be effective  in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its inclusion in the […]

26 Apr 2018

23/04/18 - Experience of Care Week 2018

Experienced excellent care at your heart child’s hospital appointments? Why not share your feedback on great care or suggest what could have worked better? Experience of Care Week takes place on 23 – 27 April and addresses what is happening across health and social care to improve experiences of care for patients, carers and staff. […]

20 Apr 2018

16/04/18 - Nutrition and congenital heart disease (CHD)

CHF are focusing on nutrition and support for children with congenital heart disease (CHD). Our campaigns page is hosting recipes from parents sharing their insights and recipes. And our Heart2Heart e-newsletter is providing food tips from a new CHD recipe book called: For babies who need to get the most out of every mouthful. More information […]

13 Apr 2018

13/04/18 - Heart conditions & infective endocarditis

Children with heart conditions are more at risk of infective endocarditis. Infective endocarditis is a rare but life-threatening disease. It’s therefore very important for heart children to take good care of their teeth. Find out more from CHF’s information sheet: http://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/your-childs-teeth/

12 Apr 2018

12/04/18 - NICE & school based interventions

The National Institute for Health and Care Excellence (NICE) is currently looking for people  to join the committee developing a quality standard on school based interventions to improve wellbeing. NICE would particularly welcome applications from: young people (18 years and older) parents and carers of children under 13 years old. Further information: https://www.nice.org.uk/get-involved/our-committees/join-a-committee/lay-member-qsac-for-school-based-interventions

11 Apr 2018

10/04/18 - The profoundest gift

‘For the first year ever, more than 1,500 people in the UK have donated their organs after they died and this means that more people than ever have had a transplant to transform their life.’ Read about Alex’s story: https://www.nhsbt.nhs.uk/how-we-help/saving-lives/patient-and-donor-stories/alexs-story/ Find out more about the NHS Organ Donor Register at www.organdonation.nhs.uk

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