This page feeds the latest news from all parts of our website.

Jan 21st 2019 - Mapping the atlas of the human heart: CHD and VSD

UK researchers are addressing the cardiac proteome in infant patients with congenital ventricular septal defect (VSD). The first atlas of the healthy human heart is known as the cardiac proteome. In a specific research initiative, UK researchers are focusing on a comparative study between right atria and right ventricles. Further information:

Jan 14th 2019 - Guideline on infant, children and young people’s experience of healthcare

The National Institute for Health and Care Excellence (NICE) are recruiting lay committee members for the guideline on infant, children and young people’s experience of healthcare. If you are a care provider, family member or have experience of the voluntary and community sector, why not find out more before recruitment closes at 5pm on Friday […]

Jan 04th 2019 - New Year hospital appointment?  Find out how to prepare yourself and your heart child

There can be a great deal of information provided during an appointment. By preparing ahead you will have a better chance of understanding the information you are given and will feel empowered with a list of informed questions. Find out how to prepare and plan by reading CHF’s ‘Talking to Doctors’ information sheet. Further information: […]

03 Jan 2019

03/01/19 - Plans for life saving skills to be taught in schools

The Education Secretary has today underlined the importance of every child having the chance to learn life-saving skills such as CPR and how to get help in a medical emergency, under plans for health education to be taught in every school. Further information:

Dec 21st 2018 - Feeding children with heart conditions

Are feeding times a challenge for you and your heart child and family? The Children’s Heart Federation (CHF) has an information sheet on feeding children with heart conditions. Download this resource and find practical advice on: The reasons that heart children have eating problems Tips for increasing calories Suggestions on getting help from other people […]

Dec 10th 2018 - CoaguChek Test Strips for Point of Care and Home Use: Risk of false high results (MDA/2018/033)

The government has issued important information regarding CoaguChek Test Strips for Point of Care and Home Use manufactured by Roche Diagnostics GmbH. There is a risk of false high results. Affected CoaguChek test strips may give false high results for INR values above 4.5 when compared to laboratory results and this may lead to incorrect […]

Dec 05th 2018 - Do your Christmas shopping online and support CHF

Nov 20th 2018 - Guidelines for children with heart conditions participating in parkrun

CHF has been liaising with parkrun UK to draft a set of guidelines for parents of children with heart conditions and parkrun organisers. The guidelines provide reassurance and information so that children with heart conditions can confidentally take part in the run and benefit from the exercise, fun and sense of achievement. ‘When I was […]

23 Nov 2018

19/11/18 - Global Atrial Fibrillation Aware Week

Atrial Fibrillation (AF) is the most common arrhythmia (heart rhythm disorder). Over 1.5 million people have been diagnosed with AF in the UK alone. This Global AF Aware Week 19 – 25 November, find out more about AF and its detection and management. Further information:

16 Nov 2018

25/10/18 - Children’s Heart Study summer newsletter

Download the project newsletter here. Over 5000 paediatric cardiac surgery procedures are performed in the UK each year and early survival has improved to over 98% however there is concern that parents are not adequately informed about possible outcomes. This research project being carried out at Great Ormond Street Hospital with input from CHF, looks […]

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