This page feeds the latest news from all parts of our website.
26 Aug 2015

26/08/15 - Pulse oximetry pilot under way

The newborn pulse oximetry screening pilot has begun The aims of the pilot are to: • understand the impact of implementing newborn pulse oximetry screening on NHS services • find out if it is feasible to roll out pulse oximetry nationally as an addition to the existing newborn and infant physical examination tests within 72 […]

19 Aug 2015

19/08/15 - Update on Bristol Review

Since issuing a call for evidence last summer, a substantial number of families have contacted the Review and have helped to build up a detailed picture of experiences of the Children’s Cardiac Service at Bristol Children’s Hospital.  In addition, evidence from the Trust and other organisations has enabled inquiry into the issues raised. The Review […]

17 Aug 2015

17/08/15 - Response from CHF on the proposal for establishing a PREMS survey for Congenital Heart Disease

Children’s Heart Federation supports the development of PREMs (Patient Reported Experience Measures) and calls also for the development of PROMs (Patient Reported Outcome Measures) because we believe that together they form a useful tool for patients to provide direct feedback on their care to help drive improvement in services. We feel both are needed because […]

22 July 2015

22/07/15 - Statement urging a swift response into implementation of congenital heart standards

News statement: 22 July 2015 Children’s heart charity urges swift implementation of congenital heart standards warning of unstable heart services for children The Children’s Heart Federation hopes that the new congenital heart care standards and service specifications will be agreed by the NHS England Board tomorrow (23 July 2015).  The new standards have been recognised […]

21 July 2015

21/07/15 - Tips when running for a charity!

Running for Charity… Paul Willgoss   Keen runner and hiker, and CHF trustee, Paul Willgoss, gives 6 tips on running for a charity.    A couple of people have asked for my tips and tricks for running for charity in the last couple of weeks, so I thought I’d write a summary of my sage […]

30 June 2015

11/06/15 - Parents Wanted: Help Improve the Communication of Surgery Outcomes for Heart Children

Are you a heart parent and would like to help us improve communicating surgery outcomes of heart children? We need to hear your ideas on how best to represent a website and it’s contents. When? Tuesday 30th June from 2:00 – 3:30pm Where? Central London *** Compensation for standard travel expenses will be provided, plus […]

21 Apr 2015

21/04/15 - Children’s Heart Federations response to NHS England’s consultation on investing in specialised services

The Children’s Heart Federation (CHF) is dedicated to helping children with congenital or acquired heart disease and their families in Great Britain and Northern Ireland. Congenital Heart Disease (CHD) is a general term used to refer to a series of birth defects affecting the heart. It is the most common type of birth congenital condition […]

2nd Apr 2015

02/04/15 - Statement in response to Open Heart online journal report

Children’s Heart Federation supports a focus on survival outcomes and measures of morbidity for heart children The Children’s Heart Federation supports the recommendation to focus on survival outcomes for heart children in a recent online report published in ‘Open Heart’. Despite the rise in the complexity of cases, the survival of children with congenital heart […]

3 Mar 2015

03/03/15 - More donor hearts needed for transplants

Increasing numbers of people in the USA are developing heart failure, while heart transplant waiting lists are becoming longer, a new study published in the American Journal of Transplantation reveals. The study shows a 32% heart donor acceptance in 2010, with older donor age, female sex, and medical conditions predicting non-acceptance of hearts from donors. […]

9 Jan 2015

09/02/15 - Heart charity calls for heart donors for children

Today (9 February) The Children’s Heart Federation is holding a Parliamentary Reception during Heart Month to raise awareness of the need for more heart donors for children and young people.  Opinion polls in the UK show the vast majority of population is in favour of organ donation but evidence shows low levels of awareness and […]

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