This page feeds the latest news from all parts of our website.
21 Jan 2017

21/01/17 - Comment on Leeds doctor, Nihal Weerasena, being found guilty of misconduct

The Children’s Heart Federation (CHF) was disappointed but not surprised at the news that Dr Nihal Weerasena, a paeadiatric congenital heart surgeon from Leeds Teaching Hospitals Trust (LTHT) has been found guilty of misconduct by the Medical Practitioners Tribunal Service (MPTS). As the national charity concerned with congenital heart disease, CHF has access to a […]

23 Jan 2017

12/01/17 - Find out more about mini-tablets trial

Interested in knowing about accurate dosaging of medicine for children? The Children’s Heart Federation is a partner in a European-wide trial dispensing tiny tablets in order to provide accurate dosages of Enalapril to children under 12. If anybody would like to know more about this trial, please contact

12 Jan 2017

09/01/17 - Congenital heart disease media

CHF focus this week on the importance of sharing information about congenital heart disease (CHD) via different media. Did you know CHF member group Downs Heart Group have created a free e-learning package for parents whose child has been diagnosed with Downs Syndrome? ‘This e-learning package is designed to empower parents who have a child […]

08 Jan 2016

06/01/17 - Paediatric Critical Care and Paediatric Specialised Surgery Service Review

CHF has taken part in this week’s Paediatric Critical Care and Paediatric Specialised Surgery Third Sector and Patient/ Parent Groups Webinar. The webinar on 05 January 2017 was a platform to update participants on early thinking for the Paediatric Critical Care and Paediatric Specialised Surgery Service Review. The Chair was Dr Peter Wilson, Clinical Lead, […]

06 Jan 2017

04/01/17 - Happy New Year from CHF!

A first ‘Hello!’ of a fantastic new year and week!   And CHF are more than motivated to ensure 2017 is a year of walking that extra mile with our heart children and families! You may already know that CHF provides information materials on congenital heart disease (CHD) including Factsheets that are free to download; […]

04 Jan 2017

20/12/16 - Christmas 2016 & New Year 2017!

The Children’s Heart Federation office will be closed for Christmas from 21st December 2016. The office will open again on 4th January 2017. If you require any information regarding congenital heart disease over the Christmas and New Year break please email Wishing you a Merry Christmas and a Happy New Year from the Children’s […]

04 Jan 2017

19/12/16 - A special CHF Thank You through Christmas & New Year

It’s the season for giving and CHF would like to give a biggest ‘Thank You’ to all our heart children and families for inspiring us throughout the past months of 2016 and continuing to do so into a brand new year to be! CHF also say a massive ‘Thank You’ to our amazing fundraisers and […]

05 Jan 2017

17/12/16 - An invitation to get involved in NHS England’s review into paediatric critical care and specialised surgery

NHS England is leading a national review into paediatric critical care and specialised surgery. The aim of the review is to ensure that services are sustainable for the future and that they deliver high quality, fair and equal care to children and families, as close to home as possible. NHS England is keen to test […]

16 Dec 2016

12/12/16 - Special needs support for heart children

CHF focus this week on our heart children’s special needs within a school setting which may include physical and learning challenges. CHF has a Factsheet on: ‘Your Child and Special Educational Needs’ that is free to access and download. Please share a challenge in a school setting that’s been overcome with your heart child and […]

11 Dec 2016

05/12/16 - Support for all those affected by a sudden young cardiac death

CHF member group Cardiac Risk in the Young (CRY) offers emotional support to bereaved family and friends following a sudden young cardiac death. Please know that CRY’s network of volunteers are trained in a British Association of Counselling (BAC) accredited course so that they can fully support those who have been bereaved by a sudden […]

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