News

This page feeds the latest news from all parts of our website.

Nov 14th 2017 - Watch our video panel

In case you are wondering why there is a snow boarding video on the homepage. The snow boarder is Shaun White who was born with Tetralogy of Fallots. If you have photographs or videos showing what a child with a heart condition can achieve and are willing to share them, please email the link or […]

23 Nov 2017

13/11/17 - CHF partner group’s #MyHeartStory campaign

Find out more about CHF partner group Cardiomyopathy UK’s #MyHeartStory campaign. Cardiomyopathy is a disease of the heart muscle that affects more than 160,000 in the UK. Signs and symptoms of cardiomyopathy may include: Breathlessness with exertion or even at rest. Swelling of the legs, ankles and feet. Bloating of the abdomen due to fluid build-up. […]

10 Nov 2017

08/11/17 - CHF & CHD awareness at BCCA 2017

CHF are taking the congenital heart disease (CHD) awareness message to the British Congenital Cardiac Association (BCCA) AGM on 09 and 10 November 2017. Paediatricians with Expertise in Cardiology Special Interest Group (PECSIG) and the Congenital Cardiac Nurses (CCNA) meetings will be running in parallel during these days. CHF look forward to sharing new CHD […]

08 Nov 2017

06/11/17 - PICU and Specialist Surgery Services Users’ Views

NHS England are seeking service users views on Paediatric Intensive Care Units (PICU) and Specialist Surgery services for children, as part of their national service review. There will be a webinar on 06 December 2017 at 11.00 that is dedicated to parents, carers and the third sector. If parents and carers would like to join the […]

03 Nov 2017

30/10/17 - A new element to CHF’s Heart2Heart

CHF’s Heart2Heart e-newsletter is a regular e-news briefing covering subjects such as research and development in congenital heart disease; information and policy; and CHF and partner groups’ home news and key events. Look out for our forthcoming Heart2Heart: Comment. A new part of CHF’s current Heart2Heart format. Concise, new and inviting CHD conversation. Further information: […]

Nov 09th 2017 - 18 October – Pulse oximetry testing message taken to Parliament

A team from CHF including Beatty Bear visited Portcullis House, Westminster to campaign for pulse oximetry testing of all newborns. The test which monitors oxygen levels can pick up potential heart conditions that have not been found during scans in pregnancy. Early recognition of heart conditions can greatly improve the outcome for the child, reduce […]

27 Oct 2017

24/10/17 - Safe in School & CHF’s CHD campaigns

Watch this space for updates on CHF’s recent Safe in School event at Parliament. We’d like to say a very big thank you to our heart children and parents for their outstanding information exchange with their MPs. Nothing speaks louder than a heart child’s and parents’ voice. Now we’re continuing our journey together with our […]

23 Oct 2017

23/10/17 - CHF & Safe in School event at Parliament today

Today, the Children’s Heart Federation (CHF) together with over 30 groups from the Health Conditions in Schools Alliance join parents; carers; and children with health conditions in a dynamic information exchange with MPs and researchers for the Safe in School event at Parliament. This event is a great way for parents and children to share […]

20 Oct 2017

19/10/17 - Safe in School event at Parliament

CHF’s keeping the positive momentum of our recently held successful Parliamentary Day and look forward to engaging directly with MPs again at Parliament on Monday 23 October 2017 at the Safe in School event. A member of the Health Conditions in Schools Alliance, CHF will be participating on this day, together with parents; volunteers and children […]

19 Oct 2017

19/10/17 - Cardiomyopathy in children & young adults

If your child or young adult has recently been diagnosed with cardiomyopathy, please know that CHF partner group Cardiomyopathy UK has a booklet about cardiomyopathy in children and young people. Further information: http://www.cardiomyopathy.org/family-carers/cardiomyopathy-in-children

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