This page feeds the latest news from all parts of our website.
16 Feb 2018

16/02/18 - Work matters & congenital heart disease

It’s important that you tell your line manager about your child’s heart condition.  Especially if you’re going to need time off or to change the date of your return to work after maternity / paternity leave. Find out more from CHF’s information sheet Working with a Heart Child:

15 Feb 2018

15/02/18 - Personal Health Budgets

A survey has been launched to understand people’s experience of personal health budgets.  NHS England has commissioned an online survey to gather feedback about people’s experiences of personal health budgets in England. All current or previous personal health budget and integrated personal budget holders can register now to receive a link to the survey when it […]

7 Feb 2018

07/02/18 - “Show you have a heart” bracelet

CHD Awareness Week 2018 is Wednesday 7 – Wednesday 14 February 2018 and to mark the occasion CHF has produced some new bracelets which will make an ideal Valentine gift for someone you love. They can be bought from the CHF shop for an opening bargain price of £1 each, from 1 March the price will […]

08 Feb 2018

20/12/17 - Pulse oximetry video

Today we have posted a video on the homepage that was in the news in 2012. Sadly pulse oximetry is still not provided as a matter of course at all hospitals. So we are still campaigning for pulse oximetry.   Find out more about the campaign here.

20 Dec 2017

18/12/17 - CHF’s congenital heart disease (CHD) support networks

A challenge shared is a challenge halved. CHF offers congenital heart disease (CHD) awareness and support together with our partner groups. In addition to accessing CHF’s CHD information sheets, parents can join our social media platforms and Facebook groups to share insights and advice about caring for a heart child and their siblings. Find out […]

15 Dec 2017

12/12/17 - Launch of organ donation consultation in England

The Government has launched a consultation into organ donation in England which will continue until 06 March 2018. The aim of the consultation is to establish what more could be done in England to ensure that public support for organ donation is reflected both within the legal system and in the NHS. And that more […]

Dec 13rd 2017 - Order a Molly’s Dolly in time for Christmas

We have changed our Molly’s Dollies application form so you can see a picture of the dolls available. It can be downloaded here…/07/mollys-dolly-application-form.… Email as an attachment to Remember you do not need a signature of a healthcare professional if you purchase the doll yourself. The doll can be bought through the CHF online shop […]

12 Dec 2017

11/12/17 - Patient & Family Focused CHD Care

A research study is addressing patterns of transition experience for parents going home from hospital with their infant after first stage surgery for complex congenital heart disease. The study notes: ‘Parental support is essential; parents need to be engaged in discharge planning process and given the opportunity to express their needs to ensure that discharge […]

08 Dec 2017

02/12/17 - The Children’s Heart Federation (CHF) welcomes NHS England’s decision to sharpen standards for Congenital Heart Disease (CHD) services

At their meeting on Thursday 30 November 2017 the Board of NHS England discussed the outcome of the public consultation on proposed changes to paediatric cardiac services and decided the following: The Liverpool Heart and Chest Hospital NHS Foundation Trust will provide level 1 adult CHD services in the North West; The University Hospitals of […]


30/11/17 - NHS England Board meeting outlines the future of congenital heart services

This meeting took place this morning, NHS England has issued a statement summarising the conclusions, read it here.

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