News

This page feeds the latest news from all parts of our website.

May 23rd 2017 - Server in transit

Currently our server is being moved so we may be unable to access email until Tuesday 30 May. If you wish to contact us in the meantime please email chfederation@gmail.com

28 May 2017

22/05/17 - Covering every aspect of the CHD journey

‘Ask Me Anything’ is the new app in development that is currently being created by young adults from CHF partner group Evelina Children’s Heart Organisation (ECHO) together with an app developer to improve transition from children’s to adults’ congenital heart disease (CHD) services. Designer Emily explains more: “The website and app will enable young people […]

22 May 2017

19/05/17 - Faulty defibrillator: users urged to check battery connection

People and organisations should check public access defibrillators for a technical fault, the Medicines and Healthcare products Regulatory Agency advised today.   People and organisations should check if they have the defibrillator model, LIFEPAK 1000 Automatic External Defibrillators (AED), because a technical fault with some of them means they may not deliver an electric shock to […]

21 May 2017

15/05/17 - Cardiac Staff Teams at Specialist Centres

Did you know the Children’s Heart Federation (CHF) has a page on our website listing paediatric cardiologists, paediatric surgeons and cardiac liaison nurses at heart units through England and Wales where heart surgery is performed on children. It has not been an easy task to put this list together so if you know of any […]

14 May 2017

10/05/17 - Resilience and congenital heart disease (CHD)

Congenital heart disease (CHD) resilience comes in many shapes and forms. Talking, reading and sharing information about it are the elements that hold it together. CHF’s Molly’s dollies choose: ‘Rosie goes red, Violet goes blue’ as their CHF book and narrative to share this important information. Would you like to introduce this CHD book to […]

31 May 2017

04/05/17 - CHF’s Heart2Heart: Your CHD e-newsletter

A new month and a new look Heart2Heart e-newsletter! Read and share – we’d love to receive your feedback! Email us at: info@chfed.org.uk or via Facebook www.facebook.com/chfed Or Twitter @chfed Let’s make 2017 the most shared in the congenital heart disease (CHD) family! Further information: http://ymlp.com/zPUdBW  

17 July 2017

28/04/17 - CHD Consultation

Please note that the congenital heart disease (CHD) consultation by NHS England will now progress until: 17 July 2017 Further information: https://www.england.nhs.uk/blog/extending-the-congenital-heart-disease-consultation/

28 Apr 2017

27/04/17 - Talking about CHD

Sharing information about disability with your heart child and siblings may be a positive way of growing in emotional resilience for each heart family and friends on their congenital heart disease (CHD) journey together. CHF’s Molly’s dollies offer a gentle and secure way of talking about the subject of CHD heart surgery scars and some […]

25 Apr 2017

11/04/17 - Cardiomyopathy UK e-magazine

CHF partner group Cardiomyopathy UK’s e-magazine ‘MyLife’ is already set for summer 2017! Download your free copy.    

11 Apr 2017

11/04/17 - MyHeart YouTube channel

CHF partner group Cardiac Risk in the Young (CRY) has launched a YouTube channel called MyHeart that is specifically providing personalised help and support to individuals between 12 and 35 years who have been diagnosed with a life threatening cardiac condition. Further information  

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