News

This page feeds the latest news from all parts of our website.

Apr 11st 2017 - Cardiomyopathy UK e-magazine

CHF partner group Cardiomyopathy UK’s e-magazine ‘MyLife’ is already set for summer 2017! Download your free copy.    

11 Apr 2017

11/04/17 - MyHeart YouTube channel

CHF partner group Cardiac Risk in the Young (CRY) has launched a YouTube channel called MyHeart that is specifically providing personalised help and support to individuals between 12 and 35 years who have been diagnosed with a life threatening cardiac condition. Further information  

4 Apr 2017

04/04/17 - Public Health England e-learning screening  education

Public Health England has opened a new e-learning platform on screening information and education. All who would like to learn more about PHE screening are invited to register for this innovative new e-learning website. PHE Screening leads the national population screening programmes, which are delivered by the NHS. These identify apparently healthy people who may […]

6 Apr 2017

04/04/17 - The boy who gave his heart away

A new book is being launched this week of a new book about organ donation based on a true story of a teenage heart donor and the teenage recipient. This story was first aired last year on Radio 4 and has been turned into a book “The boy who gave his heart away” by Cole […]

20 Jul 2017

03/04/17 - Daventry to Paris cycle ride

Good luck to Ruth Tomlin cycling from Daventry to Paris on 20th July to raise funds for CHF. https://www.justgiving.com/fundraising/Helen-tomlin1  

24 May 2017

29/03/17 - Workshop for parents – supporting siblings of disabled children

Parents in East London may be interested in this workshop run by Sibs a UK charity that supports people who grow up with or have grown up with a disabled brother or sister. This workshop will help parents of disabled children find ways of giving attention, information, and support to the other children in their […]

Mar 27th 2017 - Sign for life 2017

The Children’s Heart Federation supports the sign for life 2017 campaign. Read the story of Rhys an 11 year old who suffered from cardiomyopathy who received a heart transplant. Find out more about how organ donation can help save lives. Register here and remember to share your decision with your relatives.      

21 Mar 2017

22/03/17 - NHS to notify heart surgery patients of small risk of infection caused by heater cooler units 

The NHS yesterday (Tuesday 21st March) took the precautionary step of writing to patients who have had certain types of open heart surgery to inform them that they may have a  low risk of having contracted an infection caused by Mycobacterium chimaera (M. chimaera). Over the next two weeks, letters are being sent to patients in England, Scotland, Northern Ireland and Wales who have […]

21 Mar 2017

20/03/17 - An opportunity for young people with CHD to be heard

The NHS would like to hear from young people with congenital heart disease with their opinions about the planned changes to CHD services nationwide. Find out more and complete the survey here. NHS survey for young people with CHD  

13 Mar 2017

13/03/17 - New study in the USA explores the benefits of pre-op 3D printed hearts

“This study is incredibly important because it will finally quantify what we know from first-hand experience: 3D-printed patient-specific models improve surgery, improve outcomes and result in lower treatment costs,” said Dr Yoav Dori, Peadiatric Cardiologist, Children’s Hospital of Philadelphia. “If we can empirically demonstrate this, it will be a game-changer for treating not only children […]

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