This page feeds the latest news from all parts of our website.
06 Nov 2014

06/11/14 - Do you want to share your experiences to help others?

Are you a parent or carer of a child with a long-term medical condition or disability  who has been ill with a flu-like illness? is a website about people’s real experiences of health and illness. We are looking for PARENTS with children who: Are 12 and under Have been ill with a flu-like illness […]

04 Nov 2014

05/11/14 - Congenital heart disease standards now translated in several languages

NHS England have produced materials to explain the consultation for the new congenital heart disease standards in:  • Polish • Punjabi • Hindi • Gujarati • Urdu • Tamil  They can be found at

29 Oct 2014

30/10/14 - Children’s Heart Federation welcomes report recommendations on heart surgery at Leeds General Infirmary

News statement: 29 October 2014 The Children’s Heart Federation welcomes the recent report on heart surgery at Leeds GI (28 October 2014) and hopes that the recommendations will be taken into account when the draft standards of care for congenital heart disease, which are currently out for public consultation, are finalised. The charity is pleased […]

14 Oct 2014

14/10/14 - Children’s heart surgery to move from Belfast to Dublin

Children’s heart surgery will move to Dublin.  We appreciate that some families hoped that surgery could remain in Belfast, but we support Heartbeat NI, that this is the best option for children needing hear surgery, particularly those with complex conditions. We note that it will take 12 -18 months to put everything in place and […]

25 Sept 2014

25/09/14 - Latest Advice on Flu Vaccinations from ECHO (Evelina Children’s Heart Organisation)

For the latest advice, please do check out the following link:

24th Sept 2014

24/09/14 - Children’s Heart Federation welcomes NICE guidance for home-testing with INR machines

The Children’s Heart Federation today welcomes new guidance from the National Institute for Health and Care Excellence (NICE) which recommends self-monitoring devices for NHS use by people on long-term warfarin therapy. This guidance is one step closer to giving patients to choice to self-test their blood at home and the heart charity hopes this new […]

15 Sept. 2014

15/09/14 - Children’s Heart Federation urges swift and positive changes for heart children as care standards launched

On the launch today of the care standards and service specifications for children with congenital heart disease (Monday 15 September), the Children’s Heart Federation urges a swift decision about the shape of the future service so heart families can be reassured that their treatment and ongoing care will be of the highest quality wherever they […]

10 July 2014

11/07/14 - Disabled children failed by childcare system at every step, says inquiry

 A cross party inquiry today reveals widespread failures for disabled children across the childcare system. MPs and Peers are calling for all parties to address the serious faults at the heart of our childcare system which has led to thousands of disabled children – from toddlers to teenagers – missing out on vital education and […]

10 Jun 2014


CHF have joined a five-year study funded by the EU Commission to develop a child friendly form of an existing drug that will allow treating children of all ages with heart problems. The LENA study will trial the drug, Enalapril (ACE inhibitor) in the new form of mini-tablets, which are less than 3mm and quickly […]

15 May 2014

15/05/14 - CHF welcome new duties to support children with medical conditions in school

 The Children’s Heart Federation have welcomed new legal guidance to improve support in schools for over 1 million children with long-term medical conditions including for children living with Congenital Heart Disease. From September, schools in England will be legally required to provide high quality support to children with a medical condition. The guidance sets out […]

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