Your Stories

Welcome to the Children’s Heart Federation Personal Stories page.  Here you can keep up to date with stories involving the stars who support CHF and the families that use our services. Please be advised that some case studies may touch on very sensitive issues and express views that may not necessarily be shared by other parents or by CHF, nevertheless we value comments and thank everyone willing to share for their honesty. If you'd like to tell us your story click here to find out more.

Oct 19th 2020 - Sophia’s story

Told by her mother Tas On the 22 February 2016 I was absolutely delighted to hold Sophia in my arms for the first time.  Apart from slight jaundice and not feeding much and being very sleepy, she was perfect, she was my 3rd child and weighing 9lb, also the heaviest.  I was told babies are […]

Aug 26th 2020 - Hope’s story

Told by her mother Caroline Hope was born on the 24th January 2020 with Trisomy 21. This brings with it a list of possible medical issues, including heart defects and so she was given many scans at a just a day old. The scans revealed that Hope had a partial ASD and it was left to hopefully […]

Aug 03rd 2020 - Rowan’s story

Told by his mother Kerry When my son Rowan was one week old I noticed he looked a little blue around the edges, was breathing heavily and his fingernails had turned purple. We went straight to A&E because he was so young and small. My husband wasn’t allowed to accompany us because of coronavirus restrictions.  […]

Jul 21st 2020 - Miley’s story

Told by her mother Natalie We had been waiting for the birth of our daughter Miley for years. We had fertility treatment to help conceive her and we were so excited to meet her. I had no complications in my pregnancy and we were told at the scans that the baby was healthy. However, at […]

Jun 15th 2020 - Riley’s story

Told by her mother Chloe. Riley’s condition wasn’t picked up at ante-natal scans or after birth. When she was six and a half weeks old we took her to hospital for the first time because we were concerned about her being sleepy and refusing feeds. It was the end of January 2020. The doctor on […]

Jun 15th 2020 - Sebastian’s story

Told by his mother Julie. My son Sebastian was three months old when doctors discovered he had two holes in his heart. In December 2016 Sebastian had became very ill and after collapsing at home was rushed by ambulance to our local hospital.  He was being treated for bronchiolitis that had developed from a bad […]

Feb 20th 2020 - Rico’s story

My name is Kirsty, I am a mum to a handsome little boy who was born with congenital heart block. In my 28th week of pregnancy I was told that my baby had a serious heart condition and would possibly not survive; he would need surgery the minute he was born. When Rico was born, […]

Jan 06th 2020 - Harper’s story

Told by her mother Ellie On 24th May 2019, we welcomed our beautiful baby girl Harper Sophie Dottie Hall into the world, weighing a tiny 6 lbs 15 oz she was perfect. We had found out at our 20-week scan in January 2019 that Harper had a congenital heart defect called Tetralogy of Fallot’s but […]

Sep 04th 2019 - Lily’s story

Told by her mother Katie In April 2015 we found out we were expecting our second child and we were obviously thrilled to bits. The pregnancy progressed normally until I had my 20 week scan, the sonographer found a problem with our baby’s heart and referred us to a consultant at our local hospital. 48 […]

Sep 04th 2019 - Hugo’s story

Told by his mother Julia Hugo was born in 2012 in poor condition with intrauterine growth restriction  (IUGR) and antenatally diagnosed Transposition of the Great Arteries. The first 24 hours were very stormy, he was stabilised after an urgent balloon septostomy at four hours old and went on to have a switch at ten days. […]

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