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Brighthearts
Information Service
We help thousands of families a year cope with congenital heart disease (CHD) by providing advice and information by telephone, e-mail and through our website.
We provide information, advice and support on a range of different issues including:
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Most common heart conditions and treatments
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Performance of heart surgery centres in the UK
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Diagnosis, equipment and medicines
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Lifestyle issues affecting heart children, e.g. school and special educational needs, benefits, feeding, etc.
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Advice on general issues such as communicating with medical professionals and how to get a second opinion.
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Contact with relevant support organisations
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Contact with other parents and families.
Information Standard
The Information Standard is a certification scheme for all organisationsproducing evidence-based health and social care information for the public. It helps the public and patients quickly identify reliable sources of quality, evidence-based information through the use of an easily recognised quality mark. Visit The Information Standard website for more information or click here to view our policy statement. If you spot any inaccuracies, omissions or would like to make a complaint, comment or suggestion about any of our information products; please contact us.
All information which has gone through the certified process will be branded with The Information Standard logo.
Telephone
Calls to the Infoline are free on 0808 808 5000. If no one is available to take your call, it will go through to an answerphone where you can leave a message. We aim to provide you with a good service but if you feel we’ve let you down we’d welcome your comments or complaints so that we have the opportunity to put it right. You can find our complaints procedure here.
Children’s Heart Federation are a member of the Helplines Association
You can fill in our online query form or email the team directly at info@chfed.org.uk
Download and buy information
CHF has a wide range of fact sheets, books and other resources on heart conditions and looking after a child with a heart defect.
- Caring for heart children (fact sheets)
- Heart conditions (fact sheets)
- Books and other resources
Charges for factsheets
We do not currently charge for our factsheets. However, it costs money to update them and also to send them out to people who do not have access to the internet. If you have found the information helpful, please could you make a donation towards the cost of the information service? Thank you.
Copyright note for Children’s Heart Federation factsheets:
Both individuals and organisations are welcome to print and photocopy any complete fact sheet from this section. Organisations are free to distribute them to service users and colleagues, but must ensure they always use the latest version of the fact sheet, as available on the website, at the time of distribution.
