Information Service

We help thousands of families a year cope with congenital heart disease (CHD) by providing advice and information by telephone, e-mail and through our website.

Click to view Factsheets about heart conditions

Click to view Factsheets about caring for heart children


We provide information, advice and support on a range of different issues including:

Information Standard

The Information Standard is a certification scheme for all organisations producing evidence-based health and social care information for the public.  It helps the public and patients quickly identify reliable sources of quality, evidence-based information through the use of an easily recognised quality mark. Visit The Information Standard website for more information or click here to view our policy statement. If you spot any inaccuracies, omissions or would like to make a complaint, comment or suggestion about any of our information products, or if you would like to request bibliography or references used to produce these factsheets; please contact us or complete our online feedback form.

All information which has gone through the certified process will be branded with The Information Standard logo.



Calls to the Infoline are free on 0808 808 5000. If no one is available to take your call, it will go through to an answerphone where you can leave a message.  We aim to provide you with a good service but if you feel we’ve let you down we’d welcome your comments or complaints so that we have the opportunity to put it right.  You can find our complaints procedure here.

Children’s Heart Federation are a member of the Helplines Partnership 





You can fill in our online query form or email the team directly at

Download and buy information

CHF has a wide range of fact sheets, books and other resources on heart conditions and looking after a child with a heart defect.

Charges for factsheets
We do not currently charge for our factsheets. However, it costs money to update them and also to send them out to people who do not have access to the internet. If you have found the information helpful, please could you make a donation towards the cost of the information service? Thank you.

Copyright note for Children’s Heart Federation factsheets:
Both individuals and organisations are welcome to print and photocopy any complete factsheet from this section. Organisations are free to distribute them to service users and colleagues, but must ensure they always use the latest version of the fact sheet, as available on the website, at the time of distribution.