Your Stories

Welcome to the Children’s Heart Federation Personal Stories page.  Here you can keep up to date with stories involving the stars who support CHF and the families that use our services. Please be advised that some case studies may touch on very sensitive issues and express views that may not necessarily be shared by other parents or by CHF, nevertheless we value comments and thank everyone willing to share for their honesty. If you'd like to tell us your story click here to find out more.

Oct 15th 2013 - Rocky’s Story

James was born on the 24th February 2011,  he was born with only one kidney which I thought was his only health complaint until the doctor who did the discharge check on him found a murmur.  Following this  he was rushed down to the Special Care Unit until he was transferred to Manchester Children’s Hospital […]

Oct 15th 2013 - Kaidon’s Story

I had a difficult birth with Kaidon, when he was born he needed oxygen. Only a few days later he was sent home with the doctors saying ‘all was fine’.  Kaidon wasn’t feeding properly and was still jaundiced, when I asked the midwife and health visitor what was wrong, they told me it was because […]

Jun 24th 2013 - Rachel’s Roller-coaster Ride

by Eve In January 2012 we took Rachel to our GP as she seemed a bit under-the-weather, they said she had a heart murmur and booked her into be seen in a months time by a specialist. However Rachel took a turn for the worse and was admitted to the Freeman Hospital two days later where […]

Jun 24th 2013 - It all Happened so Quickly

by Lili-Rose Up until I was about 12 years old, I’d be fine. I’d get breathless a lot when doing sport but who doesn’t and dizziness seemed a bit normal, right? But, when I joined Air Cadets in April 2011, everything started to change. I used to do regular sport there twice a week including marching, […]

May 14th 2013 - Layla’s Story

When Layla was born we thought we had a healthy baby girl, but as months passed she became very poorly and after months of doctors and hospital visits she was finally diagnosed with a very rare heart condition called Cor Triatriatum.   Our world was turned upside-down and inside-out; she was only one,  just a […]

Mar 11st 2013 - Our Brave Son Lloyd’s Journey

Our son Lloyd is 15 and has always been a healthy child apart from suffering from ADHD, ODD & some Autistic tendencies. On the 20th January 2013 Lloyd complained of a headache so we gave him paracetamol and he went to bed during the night he started vomiting and the next day got diarrhoea.  I rang our […]

Nov 01st 2012 - My Two Heart Boys

By Joe & Jamie’s mum Catherine Joe was born by natural delivery and all though premature by 5 weeks he weighed in at a healthy 6lb and was completely fine, we were sent home a couple of days later. Joe was well for the first few weeks then developed a cold which didn’t clear up so I […]

Oct 02nd 2012 - Hamish’s Journey

By Lorraine; Hamish’s mother. Hamish was born on 28/11/06 after a normal pregnancy, a typical blue baby.   He was diagnosed at Bristol children’s hospital when he was 2 days old.  He underwent a valve repair via balloon at 2 days and thrived! When he was 10 months old I ran the Bristol half marathon in recognition of […]

Sep 20th 2012 - Jack’s Story

By Jack’s Mother Wendy “My pregnancy was normal, nothing came up at the scans. The birth was normal and all checks carried out to Jack when he was born came out fine. In hindsight there were early warning signs that if known about could have raised the alarm, such as at day 5 when he […]

Aug 28th 2012 - Alfie The Brave

By Jo James Alfie is my third child and we found out at our 20 week anomaly scan that Alfie was going to be poorly.   Nothing prepares you for that and the journey that follows. I developed pre-eclampsia which added to his complications and he needed to be delivered by Cesarean-Section.  He was born on the 11th […]

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