Molly's Dollies blog
CHF supporters may already be aware of our campaign for the introduction of Pulse Oximetry screening for all newborn babies in the UK. The test which measures the oxygen levels in the blood is proven to be effective in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its […]
May 14th 2018 - 11th May Write to your MP about safety in school settings for children with a medical health condition
CHF and the Health Conditions in Schools Alliance is campaigning for safety for all children with a medical health condition in a school setting. We want you to write to your MP about this. Download a template letter here. After it came to light that children with health conditions were not getting the care they […]
CHF joined other children’s health charities from the Health conditions in schools alliance and met with Nadhim Zahawi, Parliamentary Under-Secretary of State for Education. We requested • For all schools to post their medical conditions policy on their website and to make this actually happen … • For […]
CHF has been campaigning for the introduction of Pulse Oximetry screening for all newborn babies in the UK since 2015. The test – measuring the oxygen levels in the blood – is proven to be effective in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its inclusion in the […]
CHF attended the AGM of ECHDO the European Congenital Heart Disease Organisation from 9th to 10th March in Leicester. Attendees from countries across Europe shared experiences of issues relating to congenital heart disease and listened to a varied programme of lectures. TrustLaw presentation and main legal issues that NGOs might be facing Lauren Meyer, TrustLaw, Regional […]
AEPC Conference: Neurodevelopment and Psychosocial Care from Foetus to Adult 7th to 9th March. CHF attended this conference to promote the work of CHF to health care professionals and to learn more about how heart conditions can affect children’s development and psychological well-being. The full programme can be downloaded here and the presentation by Philip […]
CHF has produced some new bracelets to promote CHD awareness. They can be bought from the CHF shop for an opening bargain price of £1 each, from 1 March the price will go up to £2.00. Go on, show you have a heart!
Jan 18th 2018 - 16 January Disability Living Allowance (DLA) & Personal Independence Payment (PIP) Workshop
CHF led this workshop which was attended by people from a variety of heart related charities or organisations and a guest speaker from the Citizens Advice Bureau. Attendees were not only informed about the best approach for individuals to take when applying for DLA or PIP but were also able to share experience and information, […]
CHF is a member of this group which meets four times a year to identify current issues causing concern in the media or within Parliament. Information is shared and initiatives are taken forward to aid lobbying for positive improvements for children and young people’s health and welfare. The National Council for Child Health and Well-being (NCCHW) […]
CHF was presented with a cheque by Wilkin & sons in Tiptree to be presented with a cheque raised through their strawberry race held in June. Employee Leah was there with baby Freddie who is about to celebrate his first birthday. Freddie was born with Truncus Arteriosus but is doing well after four operations.