News
Jul 31st 2023 - A national strategy to address the James Lind Alliance priorities for children and adults with congenital heart disease
CHF is pleased to have taken part in the development of this newly published strategy which addresses the priorities for research on children and adults with congenital heart disease. Read the full strategy document here. Top 10 priorities for child/antenatal congenital heart disease research 1. How can damage to organs (e.g. heart, brain, lung, kidney, […]
Jul 11st 2023 - Activity days in the North East and North Cumbria
Are you a family living in the North East and North Cumbria? Do you know a child or young person living with congenital heart disease? Join CHF for some interactive day of fun and learning! Scan the QR code or click on the image to find out more
Apr 29th 2023 - Take part in the CHF 100 miles in May challenge
1 in 100 babies in the UK are born with a heart condition, between 500 – 1000 develop a heart conditions after they are born. Join CHF and run, walk, or skip to the beat by signing up, grabbing yourself a FREE CHF t shirt and walk up to 100 or as many miles as […]
Mar 28th 2023 - Family day at Whitemoor Lakes May 20th 2023
Do you know a child with a heart condition who loves adventure and challenges? Then they are invited to attend the CHF activity day on May 20th at Whitemoor Lakes, near Lichfield and can bring along the whole family, (two adult parent or carers plus siblings). There will be a range of […]
Feb 28th 2023 - What we go through every day
Teenager signs a powerful message to other young people with heart conditions As heart month draws to a close a teenager from Crewe has sent out a powerful message in British Sign Language (BSL) to other young people with heart conditions. Robert Allen gives an expressive and emotional performance signing the words of Fight Song […]
Feb 08th 2023 - CHF are recruiting for three new steering groups
Help CHF and children with heart conditions nationwide by sharing your experience in one of our steering groups. CHF are aiming to recruit for three new steering groups that will advise on issues relating to children with congenital or acquired heart conditions through lived and professional experience. We want to hear from: Young people with […]
Feb 02nd 2023 - On His Majesty’s Congenital Heart Service
As part of CHF’s mission to ensure that those affected by congenital heart conditions, and childhood acquired heart conditions, are recognised, supported and have the same opportunities as everyone else, CHF’s Chair and Vice-Chair of Trustees have engaged with the British Cardiovascular Society for many years. Working with other patients, and ably supported by others […]
Dec 12nd 2022 - Important research into the outcomes of heart surgery published
The Children’s Heart Federation (CHF) is excited to report on the findings of important research which highlights improving outcomes of heart surgery, and how congenital heart disease impacts on mental health as future priorities for the care and well-being of people with congenital heart disease (CHD). A team of UK patients, parents and healthcare professionals […]
Dec 06th 2022 - Strep A infection guidance
Update The BCCA has issued the following guidance. Dr Abbas Khushnood, Consultant Paediatric Cardiologist has also given CHF the following guidance for parents. “GAS infections are on the rise, and are certainly becoming a cause of concern for many. GAS being a bacterial infection, the risk for most children with heart conditions is similar to the […]
