Molly's Dollies blog
Jul 12nd 2018 - 12 July Heart service new standards and sharing the CHD awareness message with new fora
Making every minute count, the Children’s Heart Federation (CHF) hot footed to two key events this Thursday. It was a privilege to be part of the dynamic conversation at the 2018 London Protection Conference. Located at the London Landmark Hotel it offered a significant opportunity to introduce delegates to CHF’s work alongside children and families […]
Jul 05th 2018 - 05 July NHS turns 70: How much better our children are due to the National Health Service (NHS)
This month’s 70th anniversary of the National Health Service (NHS) offers a significant opportunity to thank all the multi-disciplinary teams and support staff that comprise team NHS. How much better our children are because of them. In this blog we also offer a global focus on health themes which translate across NHS specialties. Especially three […]
Jun 28th 2018 - 26 June Knit and natter group give their time to the Molly’s Dollies
CHF attended the Knit and natter group at Bishop’s Stortford Methodist Church with a whole crowd of Molly’s Dollies. Demand for our Molly’s Dollies is increasing steadily so Joanna Heath Project manager for CHF had approached the Knit and natter group leader Kate Rowe asking if the members would be willing to embroider scars on […]
Jun 27th 2018 - 19th June Sharing CHD awareness at primary school
Isla from Cross Arthurlie Primary School in East Renfrewshire recently contacted CHF to tell us why she chose the Children’s Heart Federation (CHF) as her charity of choice for a school research project. Each child was tasked with presenting a charity’s work via their poster presentation. Isla told us: ‘I have two sisters and my […]
Jun 20th 2018 - 6th June NHS NIPE Working Group
Big responsibility. Big opportunities. CHF attended the NHS Newborn and Infant Physical Examination (NIPE) Advisory Group where there was a dynamic exchange of information including updates on the technical aspects of the NIPE system which screens newborn babies within 72 hours of birth and then again between 6 and 8 weeks of age, for conditions relating […]
Jun 19th 2018 - 22nd May MP letter template launch
CHF supporters may already be aware of our campaign for the introduction of Pulse Oximetry screening for all newborn babies in the UK. The test which measures the oxygen levels in the blood is proven to be effective in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its […]
May 14th 2018 - 11th May Write to your MP about safety in school settings for children with a medical health condition
CHF and the Health Conditions in Schools Alliance is campaigning for safety for all children with a medical health condition in a school setting. We want you to write to your MP about this. Download a template letter here. After it came to light that children with health conditions were not getting the care they […]
May 03rd 2018 - 2nd May CHF visits the Department of Education – Safe in Schools
CHF joined other children’s health charities from the Health conditions in schools alliance and met with Nadhim Zahawi, Parliamentary Under-Secretary of State for Education. We requested • For all schools to post their medical conditions policy on their website and to make this actually happen … • For […]
Apr 26th 2018 - 11th May Write to your MP about pulse oximetry testing
CHF has been campaigning for the introduction of Pulse Oximetry screening for all newborn babies in the UK since 2015. The test – measuring the oxygen levels in the blood – is proven to be effective in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its inclusion in the […]
Mar 12nd 2018 - 9th March – ECHDO AGM
CHF attended the AGM of ECHDO the European Congenital Heart Disease Organisation from 9th to 10th March in Leicester. Attendees from countries across Europe shared experiences of issues relating to congenital heart disease and listened to a varied programme of lectures. TrustLaw presentation and main legal issues that NGOs might be facing Lauren Meyer, TrustLaw, Regional […]
