Report of the long term conditions, disability and palliative care subgroup

The Children and young people’s health outcomes forum has now published their final report. A number of points of interest, which have been included in the report and were raised by CHF in our response were:

  • They push for greater collection of data in line with our response  about those with LT health conditions including their wellbeing, pupil absence, development outcomes at 2-21 years, rates of physical activity and bullying etc
  • The need for focus on early and prompt diagnosis and to respond to parents concerns – they recommend data collected to assess time taken for diagnosis after first presentation to NHS with condition.
  • Greater focus on young peoples transition to adult services
  • Greater provision of information for patients and parents
  • Better communication – written and verbal with family and ensuring young people’s voices are considered and included
  • A statement on the need to drive care closer to home and better incentivize this

Download your copy of the report  here

 

Download CHF’s response prior to this report