NEWS
 

Let’s Get Moving for Heart Children’s Health

14th May 2009 - For immediate release 

The Children's Heart Federation (CHF) launches Let’s Get Moving for Heart Children’s Health: a call to action to include children with congenital heart disease in PE at school and to increase their access to sport in the community, at its House of Common’s reception today (14 May) in the presence of Gerry Sutcliffe MP, Minister for Sport and one hundred delegates, including representatives of nine leading sports development organisations. The event, which takes place during Children’s Heart Week (9-17 May), is designed to highlight the right of children and young people with congenital heart disease (CoHD) to sporting opportunities, in order to tackle the exclusion of pupils with CoHD from PE.


“We’ve heard from parents about unacceptable situations at school, in which children are being made to sit and play board games or just watch the other children during PE,” declares CHF Chief Executive Anne Keatley-Clarke. “Heart children have a right to inclusion in sports and this campaign is about turning that right into a reality.”

While standard medical advice is that children with CoHD naturally ‘self-limit’ and will moderate their levels of activity within their physical capabilities, some schools are so risk averse that children are very restricted, and sometimes even excluded from the playground. This can have negative effects on their current and long-term mental and physical health.

“We want to work with teachers to build their confidence around including children with CoHD,” asserts Anne Keatley-Clarke. “We will be pressing for the inclusion of sports in children’s Individual Education Plans and underpinning that drive with more information and training.”

CHF has the support of the Youth Sport Trust, whose lead on inclusion issues, Mark Botterill is a speaker at the reception, reminding delegates of the Government’s commitment to ensuring that by 2011 all 5-16 year olds can access at least 5 hours of PE and sport every week through  at  least 2 hours high quality PE in the curriculum and a further 3 hours of sport beyond the school day delivered by a range of school, community and club providers. 

Mark Botterill observes, “The starting point for many young disabled people is through high quality PE. Although we know that more mainstream schools are now including these young people, this still remains an area for further improvement.”

Delegates at the House of Commons reception represent major groups that CHF is targeting to involve in the campaign, including cardiac surgeons and cardiologists who provide information about children’s individual capabilities, parents and young people who contribute qualitative evidence about the provision of sports and sports development organisations, including several that specialise in disability sport.

“This is multi-faceted issue,” explains Anne Keatley-Clarke,”so we’re taking a team approach. We’re encouraging as many people as possible who have an interest in CoHD and sport to sign up for the Let’s Get Moving Campaign on the CHF website.” 

-- Ends --

Media enquiries to Cecilia Yardley        Office: 020 7422 0630

 Notes for editors:

  1. We can arrange interviews with parents of children who have been excluded from sport.
  2. Any journalist with an interest in the issues surrounding congenital heart disease and sport is invited to the House of Commons Reception on Thursday 14 May, 4-6pm in the Terrace Pavilion. 
  3. The Children`s Heart Federation (CHF) is an umbrella body with 22 member organisations dedicated to helping children with congenital or acquired heart disease and their families in the UK and Ireland. CHF provides information and support through its freephone helpline 0808 808 5000, open Monday to Friday and its website www.chfed.org.uk
  4. Copy of the ‘Let’s Get Moving’ campaign document attached as .pdf with this email.
  5. Congenital heart conditions are the most common birth defect in the UK. Approximately 5000 babies in the UK are born with a heart condition each year, with a further 1000 developing a serious heart problem after birth.
  6. The Survey of Experiences of Sport and Exercise for Children and Young People aged up to 19 with Congenital Heart Disease was conducted by CHF in March and April 2009 through a 16-question questionnaire to parents of heart children. Findings are based on 110 responses.
  7. Sports organisations with delegates at the House of Commons reception: Association for Physical Education / Central Council of Physical Recreation / Disability Sport Events / English Federation of Disability Sport / London Federation of Sport and Recreation / London Sports Forum for Disabled People / Special Olympics Great Britain / Tag Rugby Development Trust / Youth Sport Trust
  8. Children’s Heart Week runs from 9-17 May 2009. It will culminate with CHF’s National Sports Fun Day at Weston Park, Shifnal, West Midlands from 11am to 3.30pm on Saturday 16 May.