Other Organisations

General

  • British Cardiac Society - BCS aims to support and represent all those working in the fields of cardiovascular care and research.
  • British Heart Foundation - BHF strive to play a leading role in the fight against disease of the heart and circulation.
  • Carers Direct -  A national information, advice and support service for carers in England. Available online and as a free, confidential helpline seven days a week on 0808 802 0202, it provides accurate, relevant information for carers and those who support them.
  • ChildcareLink -  A government service that provides information and advice on childcare.
  • Children First For Health - Online guide to health and hospital life for young people, children and families with advice from Great Ormond Street Hospital.
  • Corience - Accessible, easy to understand, interactive and full of information, Corience addresses patients, parents,doctors and scientists alike.Corience is a website dedicated to congenital heart defects (CoHD). Patients and relatives can access Corience for in-depth information and useful tips on how to make life with CoHD easier.
  • Congenital Heart Disease Website - A website that sets out to give the parents and carers of children with congenital heart disease information to help them make important decisions about treatment.
  • Contact a Family - Detailed information and advice for families with disabled children.
  • Directgov - A government site bringing together the widest range of public service information and services online.
  • Ebstein’s Anomaly - A website providing information, research and parental support on the heart condition Ebsteins Anomaly.
  • Every Disabled Child Matters (EDCM) - EDCM is a campaign for disabled children and their families to have the right to the services and support they need to live ordinary lives.
  • Gransnet - The new social networking site from Mumsnet for the UK’s 14 million grandparents.  Includes an approachable health guide.
  • Mumsnet Health Guide - A selection of useful health links from the nation’s preeminant website produced by parents for parents.
  • NHS Evidence  - Use the search facility to find articles relating to congenital heart conditions.
  • Tiny Tickers - An organisation concerned with improving the detection of congenital heart disease before birth, by raising awareness and training healthcare professionals in NHS hospitals in the UK.

International Organisations

  • Canadian Adult Congenital Heart Network - The CACH Network was created to pool the knowledge and experience of congenital heart disease professionals in Canada to help strengthen their skills and knowledge of the discipline.
  • Canadian Congenital Heart Alliance - A registered charitable organization made up of patients with a congenital heart defect, their friends, families, and the medical community.
  • Congenital Heart Information Network - provides information, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease.