Other Organisations


  • British Cardiac Society – BCS aims to support and represent all those working in the fields of cardiovascular care and research.
  • British Heart Foundation – BHF strive to play a leading role in the fight against disease of the heart and circulation.
  • Carers Direct –  A national information, advice and support service for carers in England. Available online and as a free, confidential helpline seven days a week on 0808 802 0202, it provides accurate, relevant information for carers and those who support them.
  • ChildcareLink –  A government service that provides information and advice on childcare.
  • CONTACT – Detailed information and advice for families with disabled children.
  • Directgov – A government site bringing together the widest range of public service information and services online.
  • Gransnet – The new social networking site from Mumsnet for the UK’s 14 million grandparents.  Includes an approachable health guide.


  • Mumsnet Health Guide – A selection of useful health links from the nation’s preeminant website produced by parents for parents.


  • NHS Evidence  – Use the search facility to find articles relating to congenital heart conditions.




  • Tiny Tickers – An organisation concerned with improving the detection of congenital heart disease before birth, by raising awareness and training healthcare professionals in NHS hospitals in the UK.

International Organisations

  • Canadian Adult Congenital Heart Network – The CACH Network was created to pool the knowledge and experience of congenital heart disease professionals in Canada to help strengthen their skills and knowledge of the discipline.
  • Canadian Congenital Heart Alliance – A registered charitable organization made up of patients with a congenital heart defect, their friends, families, and the medical community.
  • Congenital Heart Information Network – provides information, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease.

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