Research Programmes

The Children’s Heart Federation supports several research studies to improve the understanding, diagnosis and treatment of congenital or aquired heart disease in children.

Feb 06th 2013 - Infant Heart Study

The Infant Heart Study is a national study looking at follow up care for babies with congenital heart disease in the UK. The aim of the study is to improve the information and support available to families when they take their baby home from hospital after surgery. We are really keen to hear your views […]

Jun 18th 2012 - Patient Care Study

CHF supports a research study at Great Ormond Street Hospital which is working on improving the care patients and families receive following heart surgery. In particular,  the research of  Dr. Jo Wray, who is looking at the factors associated with parent’s stress and coping mechanisms when children are hospitalized. Other aspects of this project involve looking into the impact of […]

Jun 18th 2012 - Fit to Fly Study

Dr. Daubeney and Dr. Naqvi from the Royal Brompton & Harefiled NHS Trust are looking into establishing guidelines for children to safely fly, including defining those who may require additional oxygen. Currently it is unclear how high altitude may affect children with low oxygen saturation levels. For more information contact samanas@chfed.org.uk  

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