Press Releases & Statements

Press releases and statements issued by Children's Heart Federation.

Jul 18th 2017 - Response from CHF to the proposals from NHS England to implement the standards for congenital heart disease (CHD) services for children and adults in England

1. The capacity in which we are responding  CHF is a national CHD patient/parent led organisation that represents patients with all forms of CHD and their carers. We have taken account of the views expressed by both our partner organisations and by individual parents and carers. 2. Our response to NHS England’s proposal that in […]

05 Jun 2017

17/02/17 - Consultation on CHD Proposals

INFORMATION FROM NHS ENGLAND Dear Patient & Public Engagement Group member As you are aware we have been preparing for consultation on proposals for Congenital Heart Disease services for some months. We are now able to launch the consultation and it is now live – 9.30am 9th February 2017. The consultation will run until 23.59 on […]

10 Jul 2016

07/07/16 - CHF comment on decision of the Specialised Services Commissioning Committee (SSCC)

We congratulate NHS England on its thorough review of congenital cardiac services and we are very pleased to see the SSCC making tough but very necessary decisions that will bring the congenital heart disease service closer to meeting the agreed standards of care. We recognise that by making clear that some hospitals do not and […]

08 Jul 2016

30/06/16 - The patient first

CHF are interested to hear the outcome of the Bristol review and note that improvements have been made to the service since 2014. However, we would point out that congenital cardiac services must be one of the most reviewed services in the UK. We are currently waiting to hear how, and when, the  new standards […]

22 July 2015

22/07/15 - Statement urging a swift response into implementation of congenital heart standards

News statement: 22 July 2015 Children’s heart charity urges swift implementation of congenital heart standards warning of unstable heart services for children The Children’s Heart Federation hopes that the new congenital heart care standards and service specifications will be agreed by the NHS England Board tomorrow (23 July 2015).  The new standards have been recognised […]

2nd Apr 2015

02/04/15 - Statement in response to Open Heart online journal report

Children’s Heart Federation supports a focus on survival outcomes and measures of morbidity for heart children The Children’s Heart Federation supports the recommendation to focus on survival outcomes for heart children in a recent online report published in ‘Open Heart’. Despite the rise in the complexity of cases, the survival of children with congenital heart […]

24th Sept 2014

24/09/14 - Children’s Heart Federation welcomes NICE guidance for home-testing with INR machines

The Children’s Heart Federation today welcomes new guidance from the National Institute for Health and Care Excellence (NICE) which recommends self-monitoring devices for NHS use by people on long-term warfarin therapy. This guidance is one step closer to giving patients to choice to self-test their blood at home and the heart charity hopes this new […]

29 Jul 2013

30/07/13 - TOP BRITISH ATHLETE, LESLEY OWUSU TO JOIN BRIGHTHEARTS WEEKENDER

British athlete, Lesley Owusu will be inspiring young people with heart conditions at the Brighthearts Forum ‘Wonderful Weekender’ on the 12th and 13th October, 2013. The former 400 metre British champion has been confirmed as a speaker at an event in London, bringing together young people from all around the UK. The free weekend, run […]

12 Jun 2013

12/06/13 - NEWS RELEASE – “12 YEAR DELAY IN REFORMING HEART SURGERY IS COSTING CHILDREN’S LIVES” SAYS CHARITY

  “12 YEAR DELAY IN REFORMING HEART SURGERY IS COSTING CHILDREN’S LIVES” SAYS CHARITY The UK’s leading children’s heart charity says children’s lives are being put at risk because of monumental delays in reforming England’s heart surgery services. The Children’s Heart Federation is urging NHS England to “be brave” and implement the new standards of care resulting […]

21 May 2013

21/05/13 - News Release – SHOREDITCH ACCOUNTANTS MADE CHARITY DRAGON BOAT RACE A ROARING SUCCESS

NEWS RELEASE For immediate release   SHOREDITCH ACCOUNTANTS MADE CHARITY DRAGON BOAT RACE A ROARING SUCCESS Staff from Shoreditch accountancy firm, PJ Marks & Co LLP, tackled the Thames to raise money for children with heart conditions at the Children’s Heart Federation’s annual Dragon Boat Race. The local business sponsored the event at which hundreds […]

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