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15 Feb 2019

13/02/19 - CHD awareness week

This week we are sharing on the website homepage this video created by Naomi Moazzeny for CHD awareness week featuring the children from Team 1C at Alder Hey Children’s Hospital. Thanks Naomi. Keep on sharing and raising awareness of CHD.    

Feb 08th 2019 - Healthcare, medicine and Brexit

In the current climate of uncertainty around Brexit and the possibility of a no-deal exit, patients and their parents/ carers need to be aware of the following: Arrangements for reciprocal healthcare. People with hard to insure or potentially uninsurable health conditions may face challenges moving around the EU in the event of a no deal […]

Jan 24th 2019 - Mia’s story

Mia was born on 14th October 2010 six weeks early and weighing 5lb 6oz (a good weight for her prematurity). She was breathing at birth but stopped shortly afterwards and had to be resuscitated. She was then put on a ventilator but pulled the ventilator out and was breathing on her own and incubated. Ormskirk […]

Jan 21st 2019 - Mapping the atlas of the human heart: CHD and VSD

UK researchers are addressing the cardiac proteome in infant patients with congenital ventricular septal defect (VSD). The first atlas of the healthy human heart is known as the cardiac proteome. In a specific research initiative, UK researchers are focusing on a comparative study between right atria and right ventricles. Further information:

Jan 14th 2019 - Guideline on infant, children and young people’s experience of healthcare

The National Institute for Health and Care Excellence (NICE) are recruiting lay committee members for the guideline on infant, children and young people’s experience of healthcare. If you are a care provider, family member or have experience of the voluntary and community sector, why not find out more before recruitment closes at 5pm on Friday […]

Jan 04th 2019 - New Year hospital appointment?  Find out how to prepare yourself and your heart child

There can be a great deal of information provided during an appointment. By preparing ahead you will have a better chance of understanding the information you are given and will feel empowered with a list of informed questions. Find out how to prepare and plan by reading CHF’s ‘Talking to Doctors’ information sheet. Further information: […]

03 Jan 2019

03/01/19 - Plans for life saving skills to be taught in schools

The Education Secretary has today underlined the importance of every child having the chance to learn life-saving skills such as CPR and how to get help in a medical emergency, under plans for health education to be taught in every school. Further information:

Dec 21st 2018 - Feeding children with heart conditions

Are feeding times a challenge for you and your heart child and family? The Children’s Heart Federation (CHF) has an information sheet on feeding children with heart conditions. Download this resource and find practical advice on: The reasons that heart children have eating problems Tips for increasing calories Suggestions on getting help from other people […]

Dec 10th 2018 - CoaguChek Test Strips for Point of Care and Home Use: Risk of false high results (MDA/2018/033)

The government has issued important information regarding CoaguChek Test Strips for Point of Care and Home Use manufactured by Roche Diagnostics GmbH. There is a risk of false high results. Affected CoaguChek test strips may give false high results for INR values above 4.5 when compared to laboratory results and this may lead to incorrect […]

Dec 05th 2018 - Do your Christmas shopping online and support CHF

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