News

This page feeds the latest news from all parts of our website.
10 July 2019

10/07/19 - Comment for The Lancet on pulse oximetry screening

Professor Andrew Ewer and colleagues make the case for all babies in the UK to be screened for heart defects at birth. CHF continues to support this campaign. Please make your voice heard by responding to the public consultation.    

1 July 2019

01/07/19 - Molly Monday – how to order a Molly’s Dolly

Often people contact us confused as to how to pay for a Molly’s Dolly and ensure that it receives the correct scarring. There are two parts to the procedure. Order the doll from the shop, you can choose the doll you would like and can pay for it there. There is no way at this […]

Jun 26th 2019 - Pulse oximetry – your chance to voice your opinion

The UK’s National Screening Committee has been considering routine pulse oximetry screening for critical heart defects in newborn babies for a number of years. A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A […]

27 June 2019

23/05/19 - Public consultation – have your say. Deadline 9 August 2019

A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A public consultation is now being held on whether the evidence presented supports the decision. This is your chance to tell your story […]

24 May 2019

20/05/19 - CHF’s congenital heart disease (CHD) information service

CHF’s congenital heart disease (CHD) information service offers resources focusing on heart conditions as well as a wide variety of information sheets on all aspects of caring for a heart child.  These include: planning holidays as a family hardship funds sourcing insurance companies specialising in children with a health condition. Further information: http://www.chfed.org.uk/how-we-help/information-service/

15 May 2019

15/05/19 - What we do and how we help

That’s it really, we’ve produced a new document explaining what CHF does and how we help. You can download it here.

14th May 2019

14/05/19 - Let us know your experiences of pulse oximetry testing

or lack of it. CHF is joining with other charities in campaigning for pulse oximetry testing on all new born babies. We’d like to hear from you if: Your child had a heart defect detected by a pulse oximeter. or If your child was not offered a test and a heart condition was missed as […]

13 May 2019

13/05/19 - Search and spend to help CHF

We’re excited to announce Savoo Search, Save and Raise as our new fundraising partner, and we’d like to introduce you to this innovative way of donating. Simply use Savoo Search as your default search engine (the same way as you would your current search engine) and Savoo will donate 1p for every search. If you’re […]

10 May 2019

09/05/19 - What we do and how we help

If you are thinking of fundraising for CHF or simply want to know more about what we do, then we have a new leaflet that tells you exactly that. Download it here. What we do and how we help

09 May 2019

06/05/19 - Children with congenital heart disease (CHD) and exercise

CHF provides an information sheet with guidelines for children with congenital heart disease (CHD) or acquired heart conditions participating in parkrun. Parkrun is a free, weekly running event across the UK where children can take part in a shared run, rather than a race. Further information: http://www.chfed.org.uk/wp-content/uploads/2019/04/parkrun-guidelines-for-children-with-heart-conditions.pdf

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