Professor Andrew Ewer and colleagues make the case for all babies in the UK to be screened for heart defects at birth. CHF continues to support this campaign. Please make your voice heard by responding to the public consultation.
Often people contact us confused as to how to pay for a Molly’s Dolly and ensure that it receives the correct scarring. There are two parts to the procedure. Order the doll from the shop, you can choose the doll you would like and can pay for it there. There is no way at this […]
The UK’s National Screening Committee has been considering routine pulse oximetry screening for critical heart defects in newborn babies for a number of years. A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A […]
A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A public consultation is now being held on whether the evidence presented supports the decision. This is your chance to tell your story […]
CHF’s congenital heart disease (CHD) information service offers resources focusing on heart conditions as well as a wide variety of information sheets on all aspects of caring for a heart child. These include: planning holidays as a family hardship funds sourcing insurance companies specialising in children with a health condition. Further information: http://www.chfed.org.uk/how-we-help/information-service/
or lack of it. CHF is joining with other charities in campaigning for pulse oximetry testing on all new born babies. We’d like to hear from you if: Your child had a heart defect detected by a pulse oximeter. or If your child was not offered a test and a heart condition was missed as […]
We’re excited to announce Savoo Search, Save and Raise as our new fundraising partner, and we’d like to introduce you to this innovative way of donating. Simply use Savoo Search as your default search engine (the same way as you would your current search engine) and Savoo will donate 1p for every search. If you’re […]
CHF provides an information sheet with guidelines for children with congenital heart disease (CHD) or acquired heart conditions participating in parkrun. Parkrun is a free, weekly running event across the UK where children can take part in a shared run, rather than a race. Further information: http://www.chfed.org.uk/wp-content/uploads/2019/04/parkrun-guidelines-for-children-with-heart-conditions.pdf