News
Oct 12nd 2022 - Event for parents and carers of children with heart conditions – Have your say!
We are planning in person activities for children with heart conditions and invite families and carers to join the CHF team for a focus group discussion. This will be a great opportunity to meet one another, share experiences and concerns as a group, and to help us ensure CHF continues to meet needs and concerns […]
Sep 09th 2022 - Her Majesty Queen Elizabeth II 1926 – 2022
Our deepest condolences are with the Royal family as we remember Her Majesty’s lifetime of service with heartfelt gratitude and remain inspired by her commitment to charity At this time of public mourning we reflect on The Queen’s reign across the country, the UK and the Commonwealth and her awareness that the “impact of thousands […]
Aug 09th 2022 - New survey from CHF – Individual Healthcare Plans
We’d like to know more about home/school communication and how it works for children with heart conditions, their parents and teachers. Please complete the survey and let us know your experiences so we can provide further help and information.
Aug 01st 2022 - Our heartfelt thanks to Anne Keatley-Clarke upon her retirement after 17 years at the CHF helm
After spending 17 years dedicated to the Children’s Heart Federation and children with congenital or acquired heart conditions our Chief Executive Officer Anne Keatley-Clarke is retiring and will be enjoying some much-earned time with her family and friends. CHF has benefitted from Anne’s expertise and determination over the last 17 years and has played a […]
Jun 22nd 2022 - NCHDA summary report
This important publication is of interest to anyone concerned about children with congenital heart disease. The National Congenital Heart Disease Audit collects and analyses data from all congenital cardiac centres that undertook surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2018 to 2021. The complete summary report […]
Jun 07th 2022 - Write a story for CHF
Children’s story writing competition Do you know a child who loves to write stories? Eight-year-old Ava does. She has written a fantastic story about a little girl whose brother has an organ transplant. You can read it here. Ava grew up with Dominic (Dom) the inspiration behind the CHF little story book Rosie goes red, […]
Jun 07th 2022 - Ava’s transplant story
Ava grew up with Dom who was born with a serious heart condition which eventually led to him having a heart transplant. Eight-year old Ava was inspired to write this fantastic story during her school holidays. Transplant Hello my name is Ava and I’m writing this book for children who have heart conditions. Characters Cyan […]
Jun 07th 2022 - CHF – children’s story competition rules
The rules are simple. The story must be written by a child 14 years or younger. The story must be about or include a child with a heart condition. Deadline for entries is extended to 26th August 2022. Winners will receive a prize goodie bag from CHF. Please email entries to info@chfed.org.uk with Children’s story […]
May 18th 2022 - New study on the benefits of exercise for children with single-ventricle heart conditions
A new study in Australia and New Zealand is investigating the benefits of exercise for children with single-ventricle heart conditions. The research is being conducted by cardiologist Associate Professor Rachael Cordina. “Emerging research is now suggesting that exercising is even more important than in the general population for people with the most complex types of […]
Apr 26th 2022 - Tell your MP to #SENDABetterMessage
Some but not all children with heart conditions are disabled, but please join CHF in supporting the Disabled Children’s Partnership to help create a fairer support system for all disabled children and their families. The Disabled Children’s Partnership (DCP) is calling on the government to use its SEND reform programme to create a more just, […]
