New CHD Review

All the latest news from the new review into Congenital Heart Disease services in the UK.
21 Mar 2017

20/03/17 - An opportunity for young people with CHD to be heard

The NHS would like to hear from young people with congenital heart disease with their opinions about the planned changes to CHD services nationwide. Find out more and complete the survey here. NHS survey for young people with CHD

09 Feb 2017

09/02/17 - NHS England CHD Consultation

NHS England’s consultation on proposals for Congenital Heart Disease (CHD) services is now open. This consultation process takes place: 09 February 2017 until 23.59 on Monday 05 June 2017 All details, proposals and lists of events and activities both digital and face to face that are being held can be found on the consultation hub. […]

23 Jan 2017

12/01/17 - Find out more about mini-tablets trial

Interested in knowing about accurate dosaging of medicine for children? The Children’s Heart Federation is a partner in a European-wide trial dispensing tiny tablets in order to provide accurate dosages of Enalapril to children under 12. If anybody would like to know more about this trial, please contact info@chfed.org.uk

05 Jan 2017

17/12/16 - An invitation to get involved in NHS England’s review into paediatric critical care and specialised surgery

NHS England is leading a national review into paediatric critical care and specialised surgery. The aim of the review is to ensure that services are sustainable for the future and that they deliver high quality, fair and equal care to children and families, as close to home as possible. NHS England is keen to test […]

30 Nov 2016

30/11/16 - CHF’s new fathers’ points of view request on CHD & family support

An international research study noted in the Karolinska Institutet has focused on new fathers’ concerns including: money upbringing the health of their child. CHF would like to hear from our new fathers on their views too. Please share your experiences via info@chfed.org.uk or via our Facebook page. We’d like to start a conversation on this […]

13 Nov 2016

07/11/16 - Parents’ views on developing an app to manage children’s pain

CHF would greatly value CHF parents’ views following a request from a research team who are addressing a project to develop the content and functionality of an app to inform, engage and support parents in managing their child’s pain whilst in hospital. We are circulating a survey at the moment to ask parents what they […]

03 Jan 2017

04/11/16 - CHF, CHD & collaborative research

CHF are looking forward to future collaborative work addressing congenital heart disease (CHD) support for children and families.  And we especially look forward to supporting potential research being addressed by Prof Priscilla Alderson and Dr Katy Sutcliffe from University College London and would like to invite our healthcare and Heart2Heart colleagues to similarly support the […]

10 Jul 2016

07/07/16 - CHF comment on decision of the Specialised Services Commissioning Committee (SSCC)

We congratulate NHS England on its thorough review of congenital cardiac services and we are very pleased to see the SSCC making tough but very necessary decisions that will bring the congenital heart disease service closer to meeting the agreed standards of care. We recognise that by making clear that some hospitals do not and […]

19 Nov 2014

18/12/14 - Heart Surgery for Congenital Heart Defects – Science or Art?

Professor Martin Elliott’s latest lecture explains how CHD surgery has developed and describes the disruptive effect of the introduction of cardiopulmonary bypass, the impact of new materials, the deeper understanding of the stresses of surgery and the impact of new drugs. Watch ‘Heart Surgery for Congenital Heart Defects – Science or Art?’

04 Nov 2014

05/11/14 - Congenital heart disease standards now translated in several languages

NHS England have produced materials to explain the consultation for the new congenital heart disease standards in:  • Polish • Punjabi • Hindi • Gujarati • Urdu • Tamil  They can be found at http://www.england.nhs.uk/ourwork/qual-clin-lead/chd/translated-materials/

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