New CHD Review

All the latest news from the new review into Congenital Heart Disease services in the UK.

Mar 20th 2017 - An opportunity for young people with CHD to be heard

The NHS would like to hear from young people with congenital heart disease with their opinions about the planned changes to CHD services nationwide. Find out more and complete the survey here. NHS survey for young people with CHD Please know that the NHS Congenital Heart Disease (CHD) consultation closed on 17 July 2017. Please watch CHF’s […]

Feb 09th 2017 - NHS England CHD Consultation

NHS England’s consultation on proposals for Congenital Heart Disease (CHD) services took place: 09 February 2017 until 23.59 on Monday 17 July 2017 All details, proposals and lists of events and activities both digital and face to face that were held can be found on the consultation hub. Further information: http://www.engage.england.nhs.uk​ If you have any […]

Jan 12nd 2017 - Find out more about mini-tablets trial

Interested in knowing about accurate dosaging of medicine for children? The Children’s Heart Federation is a partner in a European-wide trial dispensing tiny tablets in order to provide accurate dosages of Enalapril to children under 12. If anybody would like to know more about this trial, please contact info@chfed.org.uk

05 Jan 2017

17/12/16 - An invitation to get involved in NHS England’s review into paediatric critical care and specialised surgery

NHS England is leading a national review into paediatric critical care and specialised surgery. The aim of the review is to ensure that services are sustainable for the future and that they deliver high quality, fair and equal care to children and families, as close to home as possible. NHS England is keen to test […]

Nov 30th 2016 - CHF’s new fathers’ points of view request on CHD & family support

An international research study noted in the Karolinska Institutet has focused on new fathers’ concerns including: money upbringing the health of their child. CHF would like to hear from our new fathers on their views too. Please share your experiences via info@chfed.org.uk or via our Facebook page. We’d like to start a conversation on this […]

Nov 04th 2016 - CHF, CHD & collaborative research

CHF are looking forward to future collaborative work addressing congenital heart disease (CHD) support for children and families.  And we especially look forward to supporting potential research being addressed by Prof Priscilla Alderson and Dr Katy Sutcliffe from University College London and would like to invite our healthcare and Heart2Heart colleagues to similarly support the […]

10 Jul 2016

07/07/16 - CHF comment on decision of the Specialised Services Commissioning Committee (SSCC)

We congratulate NHS England on its thorough review of congenital cardiac services and we are very pleased to see the SSCC making tough but very necessary decisions that will bring the congenital heart disease service closer to meeting the agreed standards of care. We recognise that by making clear that some hospitals do not and […]

19 Nov 2014

18/12/14 - Heart Surgery for Congenital Heart Defects – Science or Art?

Professor Martin Elliott’s latest lecture explains how CHD surgery has developed and describes the disruptive effect of the introduction of cardiopulmonary bypass, the impact of new materials, the deeper understanding of the stresses of surgery and the impact of new drugs. Watch ‘Heart Surgery for Congenital Heart Defects – Science or Art?’

04 Nov 2014

05/11/14 - Congenital heart disease standards now translated in several languages

NHS England have produced materials to explain the consultation for the new congenital heart disease standards in:  • Polish • Punjabi • Hindi • Gujarati • Urdu • Tamil  They can be found at http://www.england.nhs.uk/ourwork/qual-clin-lead/chd/translated-materials/

22 Oct 2014

22/10/14 - The Heart: An Introduction

Join Professor Martin Elliott for an introduction to how the treatment of congenital heart disease can be viewed as an example of the complex mixture of technology, ethics, economics and science. Watch ‘The Heart: An Introduction’

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