Molly's Dollies blog

Aug 23rd 2018 - The inspiration for Molly’s Dollies goes on to inspire others with GCSE success

Molly was born on 15 December 2001 with Truncus Arteriosus type one with a ventricular septal defect (VSD) and an atrial septal defect (ASD), she had open heart surgery at three weeks old in January 2002. When Molly got older around the time she was about to start primary school, she began to question her […]

Jul 26th 2018 - 26 July CHF say a big thank you to Persimmon Homes Essex

A very special week where the Children’s Heart Federation (CHF) has an opportunity to say a big thank you to  Persimmon Homes Essex for their significant donation to CHF’s Molly’s Dollies initiative. This means 40 bespoke Molly’s Dollies rag dolls with personalised congenital heart disease scarring will now be able to accompany 40 children with […]

Jul 12nd 2018 - 12 July Heart service new standards and sharing the CHD awareness message with new fora

Making every minute count, the Children’s Heart Federation (CHF) hot footed to two key events this Thursday.  It was a privilege to be part of the dynamic conversation at the 2018 London Protection Conference.  Located at the London Landmark Hotel it offered a significant opportunity to introduce delegates to CHF’s work alongside children and families […]

Jul 05th 2018 - 05 July  NHS turns 70:  How much better our children are due to the National Health Service (NHS)

This month’s 70th anniversary of the National Health Service (NHS) offers a significant opportunity to thank all the multi-disciplinary teams and support staff that comprise team NHS. How much better our children are because of them. In this blog we also offer a global focus on health themes which translate across NHS specialties.  Especially three […]

Jun 28th 2018 - 26 June Knit and natter group give their time to the Molly’s Dollies

CHF attended the Knit and natter group at Bishop’s Stortford Methodist Church with a whole crowd of Molly’s Dollies. Demand for our Molly’s Dollies is increasing steadily so Joanna Heath Project manager for CHF had approached the Knit and natter group leader Kate Rowe asking if the members would be willing to embroider scars on […]

Jun 27th 2018 - 19th June Sharing CHD awareness at primary school

Isla from Cross Arthurlie Primary School in East Renfrewshire recently contacted CHF to tell us why she chose the Children’s Heart Federation (CHF) as her charity of choice for a school research project. Each child was tasked with presenting a charity’s work  via their poster presentation. Isla told us: ‘I have two sisters and my […]

Jun 20th 2018 - 6th June NHS NIPE Working Group

Big responsibility.  Big opportunities.  CHF attended the NHS Newborn and Infant Physical Examination (NIPE) Advisory Group where there was a dynamic exchange of information including updates on the technical aspects of the NIPE system which screens newborn babies within 72 hours of birth and then again between 6 and 8 weeks of age, for conditions relating […]

Jun 19th 2018 - 22nd May MP letter template launch

CHF supporters may already be aware of our campaign for the introduction of Pulse Oximetry screening for all newborn babies in the UK. The test which measures the oxygen levels in the blood is proven to be effective in detecting three quarters of congenital heart conditions.    We’re leading this campaign and pushing for its […]

May 14th 2018 - 11th May Write to your MP about safety in school settings for children with a medical health condition

CHF and the Health Conditions in Schools Alliance is campaigning for safety for all children with a medical health condition in a school setting. We want you to write to your MP about this. Download a template letter here. After it came to light that children with health conditions were not getting the care they […]

May 03rd 2018 - 2nd May CHF visits the Department of Education – Safe in Schools

              CHF joined other children’s health charities from the Health conditions in schools alliance and met with  Nadhim Zahawi, Parliamentary Under-Secretary of State for Education. We requested • For all schools to post their medical conditions policy on their website and to make this actually happen … • For […]

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