Little Hearts Matter

Little Hearts Matter is the national voice for families where a single ventricle heart condition, such as Hypoplastic Left Heart Syndrome, Tricuspid Atresia, Double Inlet Ventricle or Pulmonary Atresia has been diagnosed. The charity works with medical and social care teams to offer a multi-disciplinary approach to the support and information needed by this group of people and their carers.

Little Hearts Matter:

  • Offers support to families at the point where a single ventricle heart condition has been diagnosed, through the treatment choices and into life at home.
  • Provides written information for parents and children.
  • Works in partnership with health and community professionals to raise awareness of the needs of these children and their families.
  • Promotes research into single ventricle heart conditions and their treatment



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