The UK’s first and only National Charity to provide support and at home care to families with babies and children under the age of 5 diagnosed with Congenital Heart Defects and or feeding difficulties. Supported by Alder Hey Children’s NHS Foundation Trust – Cardiac and Gastroenterology Departments.
A Congenital heart defect is a problem with the structure of the heart that is present from birth. Congenital heart defects are the most common type of major birth defect, affecting 1 in every 100 newborn babies. This is a staggering 1 every 15 minutes of every day! A small number of babies are born with complex congenital heart defects that require special medical care soon after birth.
Associated with these cardiac conditions are feeding difficulties. The feeding difficulty can become the centre of attention for any baby or child and can cause failure to thrive. We know first hand how parents feel the strain of having a baby or child that cannot feed and from this we would like to offer other parents support in the form of respite care at home and at hand information.Website