Search results for - 'AVSD'
Laterality Disturbance and Heart Defects
Download this information sheet as a PDF This information sheet summarises what a Laterality Disturbance is and how it can cause congenital heart defects. What does Laterality Disturbance mean? The information which is used to plan our bodies is carried by our genes; half of which we inherit from our mother and half from our […]
Medical Terms
Download this information sheet as a PDF Please contact CHF and let us know if there are additional terms or abbreviations we should add to this list: Ablation: an electric current or radio- frequency energy can be used via a catheter to destroy the extra pathways in the heart which cause tachycardia. Absent Pulmonary Valve Syndrome: the […]
Heart Conditions
Congenital heart disease is a term which covers any heart abnormality present from birth. One in every 133 babies in the UK is born with a heart condition – over 5,000 babies per year. Acquired heart defect is a term which covers a heart abnormality that develops after a baby is born. An estimated 500 […]
Atrioventricular Septal Defect (AVSD)
Download this information sheet as a PDF The aim of this information sheet is to explain what Atrioventricular Septal Defect (AVSD) is, what effect it will have on a child and how it can be treated. What is Atrioventricular Septal Defect? Atrioventricular means ‘of the atria and the ventricles’ – the four chambers of the […]
Lilygrace's Story
told by mum At my 20 week scan, I was told by the sonographer that there was something wrong with my baby’s heart and we had to go back for further scans by cardiology and fetal medicine. They confirmed that my baby has the very rare Heterotaxy syndrome right atrial isomerism (two right atria, […]
Hope's story
Told by her mother Caroline Hope was born on the 24th January 2020 with Trisomy 21. This brings with it a list of possible medical issues, including heart defects and so she was given many scans at a just a day old. The scans revealed that Hope had a partial ASD and it was left to hopefully […]
Henley's story
Told by his mother, Danielle I had a scan when I was 21 weeks pregnant, my baby was diagnosed with hypoplastic left heart syndrome (HLHS). Henley was born in 2013 and after he was examined by the cardiologist, the diagnosis was changed to HLHS with complete unbalanced AVSD and vessel variation. Henley has had three […]
COVID-19 coronavirus advice and information from CHF
COVID-19 coronavirus general information It is good to keep informed by trustworthy sources. An easy to read guide from Public Health England, please share. General advice and information produced by the Citizens Advice bureau. Symptoms Social distancing Public Health England advises that vulnerable groups should practice social distancing stringently. Most children with heart […]